“Engaging community members who are most impacted by services is one of the most critical elements to the successful design and implementation of a CIE.”
— Karis Grounds, Beth Johnson, and Camey Christenson, 211/CIE San Diego
Leveraging Community Information Exchanges for Equitable and Inclusive Data: CIE Community Profiles
Brief Dec-01-2021 , , and 3-min read
Table of Contents
Table of Contents
Report Publish Date: December 2021
This issue brief describes a qualitative study of seven communities that established community information exchanges (CIEs) to help their community members deliver and measure equitable and inclusive services.
Primary Takeaways
The authors found that trust is an important component of community information exchanges. Communities can build trust with participants, they say, by paying them for their time, clearly communicating the information exchange’s purpose and vision, being transparent, and engaging with and training participants on the road to employing them.
Common challenges in the seven communities included making community members’ participation meaningful, navigating the expectations and biases of White institutional culture, and untangling political and funding complexities.
The authors recommend developing a community information exchange accreditation process that emphasizes community voice and dedicating funding to community engagement.
Overview and Objectives
A community information exchange (CIE) is “a community-led ecosystem comprised of multidisciplinary network partners using a shared language, a resource database, and integrated technology platforms to deliver enhanced community care planning,” the authors write.
The authors wanted to spotlight efforts in seven communities to build information exchanges that prioritize equity and community voice.
Hypothesis or Approach
The authors interviewed stakeholders in seven communities that were in the early stages of planning and putting in place community information exchanges: King County, Wash.; North Central Washington; Humboldt County, Calif.; San Diego and Imperial County, Calif.; Colorado; Pinellas County, Fla.; and Broward County, Fla.
The researchers spotlight each community and share general observations about the seven communities.
How This Influences Change
Communities interested in setting up a community information exchange or improving community engagement in an existing network may be interested in the experiences of other communities and the conclusions of this brief.
Research: Go Deeper
Since publishing the Community Information Exchange (CIE) Toolkit in 2018, 211/CIE San Diego has been fortunate to provide national thought leadership and mentoring to our CIE Ambassadors, communities across the country that are planning or in the early stages of implementing a CIE. Over the years, we have seen these communities grow and offer innovative approaches to all the strategies we presented in the toolkit. One of the most rewarding benefits of our growing national membership network is to learn and share the experiences and approaches applied by these communities, particularly around engaging Community Voice.
As featured in our recent publications, A Vision for the Future and the CIE Data Equity Framework, it is critical for institutions to work from a place of anti-racism, shifting the focus from solely considering what technology works best to who benefits from the system and who needs a seat at the table to reimagine our systems of care. In this brief, we highlight 211/CIE San Diego, along with six other communities working to build better systems of care that truly benefit the people they serve. We are honored to have this opportunity to share approaches, experiences, challenges, and recommendations to engaging Community Voice to improve population health and advance health equity.
Engaging community members who are most impacted by services is one of the most critical elements to the successful design and implementation of a CIE. As such, these Community Profiles were developed to explore strategies and provide examples of how community members can be involved in the development and maintenance of community data systems, like CIEs. The Community Profiles detail current and planned work for engaging community members including novel approaches, challenges, and lessons learned:
- Approaches to community member engagement (e.g. contribution of lived experience, leadership, input and decision-making);
- Challenges and opportunities to encourage more community members and CBO participation; and
- Resources and policy that could support continued growth in this area.
211/CIE San Diego, December 2021
Research Team
This study and report was conducted and created by the following people.
- Grounds K
- Johnson B
- Christenson C
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