Dates of Project: September 2013 through April 2014
Description: The electronic Swedish Rheumatology Quality Register is actually much more than a registry. It is an interactive patient-provider decision support system. It collects and then displays visually data on patient-reported outcomes, doctor’s notes, and test results. Patients and providers use this information during an office visit to co-design and follow-up a treatment plan.
Research staff from the Dartmouth Institute for Health Policy and Clinical Practice (Lebanon, N.H.) and the Karolinska Institutet (Stockholm, Sweden) assessed the feasibility of adapting the SRQ approach for use in the United States and then developed a proposal on how to conduct a replication effort.
The Swedish Rheumatology Quality Register system “has great potential for many chronic diseases—such as Parkinson’s disease or Crohn’s disease—anything that is inflammatory and symptomatic,” says Laura C. Leviton, PhD, senior adviser for evaluation at RWJF.