Connecting Systems to Build Health Equity During COVID-19
Jul 13, 2020, 10:00 AM
COVID-19 has magnified vast racial inequities in health, underscoring an urgent need to improve alignment of medical, social and public health systems. Explore a new $1 million funding opportunity for researching systems alignment and how COVID-19 tests such collaborations.
A Personal Journey
It's hard to describe water to a fish while it’s swimming in it. I was that fish, growing up in a working-class, majority Black community in southwest Ohio. For instance, it hadn’t occurred to me to question why my school had metal detectors and armed police officers at every entrance yet so few textbooks that students had no choice but to share. Or why we had to travel to find affordable fresh vegetables while unhealthy food nearby was as easily accessible as payday loans and other predatory financial products. Having unmet needs was normal in these waters.
I was in high school when I began wondering why there were so many of these unmet needs in my community. An invitation to a cancer research conference hosted at a neighboring public school was an eye-opening experience. The school was one of the top-ranked in the state, nestled in a wealthy neighborhood with a well-stocked grocery store and multiple banks within walking distance.
These waters were different.
That sense of unfairness filtered into my own life from another angle. I attended a school with limited resources which meant that opportunities within the school were offered to only a few. Since my mother was a powerful advocate for my education, I had access to after-school activities and advanced placement classes while friends living on the same block did not. That bothered me too.
It was some years before I learned the language that explained the difference. Studying law gave me a framework to consider racial inequality by exposing me to structural barriers such as red lining, the school to prison pipeline, and Black exclusion from wealth building opportunities such as the GI Bill. I carried this framing into my later work advocating for health equity in public policy and health services research. My early experiences clarified for me what was already intuited. Race-based inequities aren’t the result of personal choices. They reflect societal decisions that give blackness second-class status and normalize their unmet needs.
This knowledge has been empowering for me because it informs the pathway to change.
A strong evidence base confirms what many of us recognize intuitively — multiple systems influence health and must be aligned to improve lives. The fact that health outcomes vary by race and other indicators reflect systemic problems in the medical system. But it also reflects how disparate economic and social circumstances are accounted for. If health care is disconnected from social services or the public health system operates in a silo removed from them both, we’re not going to make enough progress.
It’s easy to see what this means on the ground. Urging a diabetic to eat nutritious food doesn’t mean much if she lives in a food desert. Providing someone else with job training but taking away his subsidized medical care once he is employed is self-defeating. Policies that keep people who have been involved with the criminal justice system out of public housing break the link between a secure home and positive health outcomes.
In short, fragmented systems prevent us from treating the whole person. The research base we are building at Systems for Action helps us understand why we need to do better: coordinating the delivery and financing of medical care, social services, and public health saves lives. Drawing on 16 years of data from hundreds of communities across the country, an RWJF-supported study found that deaths from cardiovascular disease, diabetes, and influenza fall significantly when collaborative mechanisms are in place to promote population health.
There are many tools to align systems—including integrated financing streams, joint governance bodies, inter-organizational agreements, pooled data, and shared workforce models. But we need to learn more about what works best and get that into wider practice.
At Systems for Action, we are supporting projects that test novel ways to repair pervasive fragmentation, including these:
In Chicago, the Comprehensive Care, Community, and Culture Program (C4P) pairs high-need patients with a single outpatient and inpatient medical provider. It provides systematic screening for unmet social service needs, access to a community health worker, and community-based arts and culture programming.
In Atlanta, Georgia State University researchers plan to test whether improving transportation for low-income patients with diabetes improves access to care while reducing health care costs. These improvements could include vouchers for public transit and ride-share apps, so they can more readily reach medical care and sources of fresh food. The research question: does enhanced mobility improve access to care, diabetes progression, and the use and costs of services?
In Florida and Texas, hospitals and clinics are increasing screenings for social determinants of health so systems can work together to improve health outcomes more equitably. The screenings result in more referrals to nonprofits and other community-based organizations. It’s sometimes unclear the organizations’ capacity to absorb these increased referrals for services. New research sheds light on how to strengthen cross-system integration and expand effective partnerships.
COVID-19 Enters the Equation
These past few extraordinary months have heightened our sense of urgency. There’s a through-line from our ongoing work at Systems for Action across COVID-19 and the racial injustice that has sparked such an outpouring of protest. Black and Latino communities have borne the brunt of the pandemic—from the risk of infection and the severity of the illness to its economic reverberations. And the racist practices that have been so vividly documented in numerous locales have also sent a stark message about the need for system-wide change.
I’m not naïve enough to believe that if we could just align our systems, we would vanquish racial disparities but I am convinced the pressure we are seeing on communities of color foregrounds the power of better alignment. Early findings from that 16-year data set suggest that communities with strong multi-sector networks have fewer COVID-related deaths and lower infection rates. That information should certainly inspire action.
Black and Latino communities have borne the brunt of the pandemic—from the risk of infection and the severity of the illness to its economic reverberations. And the racist practices that have been so vividly documented in numerous locales have also sent a stark message about the need for system-wide change.
Some of our projects have pivoted to respond to the pandemic. The CCP project in Chicago, which is a sister program to C4P (described above), designed a communication campaign. It includes town hall meetings, videos and infographics, on how to care for oneself and help protect others during the pandemic. Researchers in Atlanta, as another example, recognize that public transportation may pose high risk for some. They are looking at other ways to meet the needs of diabetic patients. One possible approach is improving access to broadband technology and measuring to see whether it reduces social isolation and the associated health effects.
A Call for Proposals for COVID-19 Studies
To encourage more innovation, Systems for Action is issuing a Call for Proposals for supplemental COVID-19 studies. We want to know how medical care, public health, and social services systems can work together to create an environment in which everyone has a fair and just opportunity to be as healthy as possible. We also want to understand what difference this systems alignment makes during a crisis like the pandemic.
If you are actively conducting systems-level research, or have recently completed a study, funding is available to help you understand how your systems alignment mechanism suits the health and social needs exposed by COVID-19. To qualify for funding, you must have datasets in hand. In September, we’ll issue a second Call for Proposals to support new research along the same lines.
My personal and professional journeys have led me to much the same awareness—systems need to work together to advance health equity. Let’s all push that alignment forward.
Send us a proposal by August 5 to study how COVID-19 has affected the implementation or impact of your systems-level alignment mechanism. And watch this space for a September funding opportunity to develop new research about COVID-19 and systems alignment.
About the Author
Chris Lyttle is the deputy director of Systems for Action, where he provides strategic direction on cross-system collaborations that address the social determinants of health.