Building Bridges Between Patient Experience and Clinician Expertise

A physician consulting with a patient.

Over the last seven years, RWJF’s innovative Project HealthDesign program discovered that information patients tracked on mobile technologies—what they ate, mood, exercise, how they felt, etc.—and shared with their providers improved care management. Project teams nationwide found that patient-generated data, defined as “observations of daily living,” can be an important part of patient engagement, and a much-needed source of information for clinical care, personal health records, and the broader health data ecosystem.

Key Findings

The second round's five grantee teams worked with clinical partners and patients to:

  • Identify, capture, and store several types of OLDs for a target patient population

  • Analyze and interpret ODL data to extract clinically useful information

  • Use this information to provide feedback to patients so they could better manage their conditions and improve their health

  • Enable patients to share this information with members of their clinical care team in ways that easily integrated into their clinical workflow

  • Identify and explain opportunities and challenges associated with this overall approach to policymakers and clinical leaders

Research from Project HealthDesign

Rethinking the Power and Potential of Personal Health Records: Round One Final Report

The work products and report from the initial phase of Project HealthDesign, currently available for download, capture key learnings from the work of the program’s first nine grantee teams, as well as from its efforts to develop a common platform and explore the ethical, legal, and social issues tied to next-generation personal health records.

Read the report

Lessons from Project HealthDesign

In their discussion of Project HealthDesign, the authors describe factors to consider in protecting patient-generated health information shared through mobile devices, and make recommendations for securing that information.

Read the brief

Advancing the Vision of Consumer-Clinician-Computer Collaborations

This guest editorial introduces a supplement to the Journal of Biomedical Informatics that works from the initial round of Project HealthDesign. The articles discusses next-generation data-entry modalities, data input and output using mobile technology, and social issues raised by personal health records, among others.

Read the article

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Personal health apps help #patients manage diseases by tracking diet, sleep, mood etc. via @PrjHealthDesign

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“People often require highly personalized info to inspire them to make health changes” @PrjHealthDesign