Development and Validation of an Instrument to Measure Resources and Support for Chronic Illness Self-Management

Two national programs composing the Diabetes Initiative of the Robert Wood Johnson Foundation (RWJF) seek to improve patients’ diabetes self-management in daily living. In the Advancing Diabetes Self Management Program, six grantees are focusing on improving patient self-management in clinical settings. In the Building Community Support Program, eight grantees are increasing community resources available to help persons manage their diabetes. The overall goal of both programs is to decrease the burden of diabetes through improved self-management.

This article describes the development and validation of an instrument used to measure resources and support for self-management (RSSM) used in the survey component of the RWJF Diabetes Initiative evaluation. The article explores the purpose, development and validation of the 17-item RSSM instrument. Findings from the study confirm that the construct of resources and support for self-management is a multifactioral, fitting well within a social ecological framework. Researchers see potential use for this instrument outside of a diabetes program: its ecological orientation and connection to the larger chronic care model may extend its utility.