Bilingual Website Offers Pediatric Palliative Care Information for Parents

Development of a pediatric palliative care online resource for parents

The Children's Hospice and Palliative Care Coalition (CHPCC) created a new website and its Spanish counterpart to meet the medical, psychological and emotional needs of parents whose children are seriously or terminally ill.

Key Results

  • In June 2006, CHPCC launched www.partnershipforparents.org, an online resource designed along the continuum of a child's illness that parents can use at any point—from their child's diagnosis and treatment to recovery or death.

  • CHPCC simultaneously launched www.padrescompadres.org, the only Spanish-language website for parents of seriously or terminally ill children.

  • CHPCC plans to use survey data from the websites to support a state waiver from federal hospice eligibility requirements so that children can receive palliative care at any point in their illness, not just at the terminal stage.