Open Humans Network was a winner of the Knight News Challenge on Health, which focuses on using news and data to engage communities.
“Making data more open and accessible is essential to building more informed communities,” said John Bracken, Knight Foundation’s vice president for media innovation. “Open Humans Network answers that call, leveraging new technologies to unlock health data so that people can better make decisions on issues that are important to them.”
Ball emphasized that the project’s founders hope to reach people with a passion for science. “For individuals who care deeply about helping advance science and medicine, informed and responsible sharing of their personal health data is an important and meaningful option to benefit society,” she said.
As one participant put it: “It’s like donating your body to science, without having to die."
To register a study, enlist in research, or for more information, visit www.openhumans.org.
About Knight Foundation
Knight Foundation supports transformational ideas that promote quality journalism, advance media innovation, engage communities and foster the arts. The foundation believes that democracy thrives when people and communities are informed and engaged. Learn more at www.knightfoundation.org.
PersonalGenomes.org is a charitable organization working to generate, aggregate and interpret human biological and trait data on an unprecedented scale. Its mission is to make a wide spectrum of data about humans accessible to increase biological literacy and improve human health. The nonprofit’s efforts are informed by values encouraging greater transparency and collaboration between researchers and participants. Learn more at www.personalgenomes.org.