Open Research Exchange

Leveraging patient-reported outcome data to help patients in their everyday lives.

The Open Research Exchange aligns health outcome measures with patients’ experiences with a disease, to advance research and the patient experience.

While health outcome measures help doctors and other clinicians assess the effectiveness of care, those measures are typically developed in clinical settings, and collect information based on the needs and interests of researchers and the health care industry.

In an effort to focus more on patients' experience with a disease, the Robert Wood Johnson Foundation supported and worked with PatientsLikeMe to develop the Open Research Exchange, a platform which engages patients in capturing and reporting data that is meaningful to patients in the real world.

Using the Open Research Exchange, researchers can work with patients to rapidly develop health outcome measures that better reflect patients' interests related to their health and quality of life.

Grants and Grant Programs

RWJF supports programs to help everyone in our nation have the opportunity to live healthier lives.

Learn more about our grantmaking

Related Content

  • Program/Initiative

    Open Research Exchange

    Developed by PatientsLikeMe with support from RWJF, the Open Research Exchange enables patients to share data to support research and improve the patient experience.

  • Report

    Finding a Path to Affordable Health Care

    December 12, 2014

    The National Coalition on Health Care held a series of meetings to finalize a report on controlling health care costs, present its recommendations, and explore policy alternatives.

  • News Release

    PatientsLikeMe Invites Patients to Lead Research Projects On Open Research Exchange

    March 27, 2014

    New $2.4 Million Grant from the Robert Wood Johnson Foundation Supports Two Patient-Led Projects in 2014 to Develop, Test and Validate Patient-Reported Outcomes.

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