| Introduction
Editors' Introduction: Grantmaking insights
from The Robert Wood Johnson Foundation Anthology
By Stephen
L. Isaacs and James R. Knickman
Book reviews, letters we've received, and
personal comments from readers suggest that the Anthology
series provides an understanding of The Robert Wood Johnson
Foundation in three ways.
- First, by making public the Foundation's
decision-making processes and revealing the thinking of
key people involved in programs, the series helps demystify
the Foundation and the work of its grantees.
- Second, by providing critical, unbiased
analyses of the programs the Foundation has supported-many
of them written by award-winning journalists-it provides
insights into what has worked, what has not, and why.
- Third, by offering a panorama of the
Foundation's investments from 1972 to the present, it enables
readers to understand the approaches and the strategies
that the Foundation has adopted to improve the health and
health care of all Americans.
In last year's Anthology, we offered
some insights based on the first three volumes in the Anthology
series. In this fourth volume, we expand on that base and
identify a number of others. The ten insights on grant making
gleaned from The Robert Wood Johnson Foundation Anthology
follow below:
1. The Importance of Mission and Basic
Values
The mission of The Robert Wood Johnson Foundation,
"to improve the health and health care of all Americans,"
shapes the Foundation's culture, guides its investment strategies,
and establishes program limits. It is complemented by four
core values: pursuit of goals important to the public's health;
reliance on data; speaking through grantees; and employing
an expert staff.1
The mission and the core values give the Foundation both a
clear identity and a solid base from which to pursue its more
specific goals-increasing access to health services, improving
chronic care, and combating substance abuse. They also give
the Foundation a stability that allows it, through its programs,
to advance ideas that might not be popular at any given time,
such as increasing the opportunities for minorities to become
health professionals, promoting generalist medicine, and combating
addiction to tobacco.
2. Staying Ahead of the Curve
Foundations generally want to stay ahead
of the curve-to play a leadership role by supporting innovative
ideas that will be adopted by others. But how does a foundation
staff member-or anybody, for that matter-know where the curve
is, much less how to stay ahead of it? To a great extent,
as the Anthology series demonstrates, it is through
the efforts of a highly professional staff and expert consultants
who identify-"sense" might be a better word-areas that are
at the point where Foundation support could make a difference.
The Anthology provides many such examples. During the
1970s and 1980s the Foundation invested in emergency medical
services, regional perinatal care networks, and training of
nurse practitioners and physician assistants. None of these
was in the foreground when the Foundation first took action,
but interest in them was stirring, and some health professionals
were predicting that they were likely to become important
to the health of the American public. As it happens, all three
areas developed so rapidly that the contribution of The Robert
Wood Johnson Foundation cannot easily be distinguished from
the changes made outside of its programs. By supporting early
efforts in these fields, however, the Foundation helped propel
their development and guide them as they grew. A more recent
example is the Foundation's work on the issue of the harm
caused by tobacco. By the 1980s, the evidence was well-established
and the tobacco problem was catching attention. Yet no major
foundation was directly engaging the issue. In the early 1990s,
The Robert Wood Johnson Foundation began to play a role by
funding research, policy analysis, anti-smoking coalitions,
and a variety of other programs. Although it is difficult
to separate the Foundation's role from the changes that took
place in society during the 1990s, the Foundation clearly
was ahead of the curve. More recently, the Foundation has
turned its attention to addressing unhealthy behaviors and
to a new field called "population health," taking advantage
of recent data and a sense among many health professionals
that these are areas of growing importance.2
3. Shaping Public Debate and Perceptions
About Difficult-to-Solve Issues
Even a foundation that provides grants
of over $400 million a year can expect to have only a limited
impact in a trillion-dollar-plus health economy. Many problems,
such as drug addiction and the high number of uninsured families,
appear all but intractable. Another insight from the first
four volumes of the Anthology series is that despite an apparent
powerlessness to bring about immediate and dramatic changes
in society, foundations can keep an idea alive, even though
it has not gained wide popular acceptance, and can work to
influence the way opinion leaders and the broad public perceive
issues. Take generalist medicine. Although The Robert Wood
Johnson Foundation was swimming against the specialist current
for many years, its persistent efforts lent stature to the
idea that more generalist physicians were needed, and its
grants to medical schools helped them prepare for the influx
of students pursuing generalist careers once managed care
began creating jobs for primary care physicians. Another example
is treatment of people towards the end of their lives. A large
research project, called SUPPORT, found that the wishes of
dying patients and their families were not being understood
by physicians because of difficulties in communication. This
disturbing finding led the Foundation to undertake a major
multiyear effort to raise the consciousness of the medical
profession and the public about the importance of improving
the treatment of people towards the end of their lives. The
Robert Wood Johnson Foundation also helps shape public attitudes
through its research and communications efforts. Much of what
the public knows about the uninsured comes from the widespread
distribution of findings from a series of Foundation-funded
access-to-care surveys beginning back in 1976. Similarly,
much of what is known about medical malpractice, managed care,
substance abuse, and sexuality derives from the dissemination
of research undertaken by Foundation grantees.
4. Changing the Focus of Demonstration
Programs
For its first 15 to 20 years, The Robert
Wood Johnson Foundation followed a relatively straightforward
strategy. It would often fund a demonstration program that
tested an innovative service approach or policy idea in a
number of locations; if the approach appeared successful,
the federal government would likely take it on and expand
it substantially. The early reputation of the Foundation was
built upon its national demonstration programs, some of which-emergency
medical services and nurse-practitioner training are but two
examples-were adopted by the federal government. But the federal
government no longer picks up and expands many programs, particularly
when these programs increase taxes. As a result, The Robert
Wood Johnson Foundation has adopted new and more nuanced approaches
to demonstration projects:
- Demonstrations now tend to be larger
as the Foundation tries to affect the lives of more people
through its programs. As Sharon Begley and Ruby Hearn point
out in this volume, the Urban Health Initiative is not just
a pilot project. It attempts to improve the health and safety
of young people across entire cities.
- To a greater extent than before, the
Foundation works with state and local governments. Since
1991, for example, it has assisted state governments interested
in reforming the financing of health care services. And
since 1992, it has supported Making the Grade, a program
built on the premise that the long-term financial stability
of school-based health services "must be secured through
state and community involvement."3
- The Foundation now looks to fund coalitions
of nongovernmental organizations. One example is the Faith
in Action program in which the Foundation supports coalitions
of religious congregations and organizations whose members
volunteer their services to help those in need. This approach
has proved so promising that the Foundation recently agreed
to award more than $100 million over the next seven years
to fund 2,000 additional local coalitions.
5. Adopting Multi-Faceted Approaches
that Embrace Institutions and Fields
In his chapter for this year's Anthology,
Frank Karel observes, "the most powerful way that foundations
can spark social change is to use their monies to fund the
creation of new institutions or fundamental change of existing
institutions." Although foundations are more limited in their
ability to do this than in earlier days, The Robert Wood Johnson
Foundation has had a rich experience in developing new institutions
and transforming existing ones. With this approach-what might
be called "360 degree funding"-all the key aspects of an innovation
are covered.
For example, to develop and shape the new
profession of nurse-practitioner in the 1970s and 1980s, the
Foundation funded nurse-practitioner programs in nursing schools
willing to add them; a fellowship program for nurses who became
the nucleus of trainers of nurse-practitioners; the creation
of a professional society for nurse practitioners; research
on relevant aspects of nursing; programs that employed nurse-practitioners,
and collaborations among institutions (such as universities,
HMOs, state agencies, and employers) to train nurse-practitioners.
Similarly, the Foundation has adopted a
wide variety of strategies to encourage managed care organizations
to improve the diagnosis and treatment of their members with
chronic conditions. It has supported the collection and dissemination
of information on HMOs and chronic care; brought together
researchers and practitioners focusing on the topic; worked
with a national accrediting agency to include chronic care
among its indicators; funded demonstration projects; and financed
research. While it is too soon to know whether managed care
will significantly alter its chronic care practices, this
array of programs prepares the groundwork for such institutional
change.
6. Reforming Systems of Delivering
Health Care Services
Another grantmaking insight derives from
the Foundation's many years of experience with programs seeking
to overcome the fragmentation of health care services and
to reorganize the systems that deliver them. There is much
to be learned from its successes and its failures.
First, although "systems change" has a
neutral ring to it, systems are rooted in politics and people.
What is logical organizational reform for one person may be
loss of turf and income for another. Reforming delivery systems
implies that foundations understand, and become involved-to
some degree at least-in the messiness and factionalism of
political processes. As Beth Stevens and Lawrence Brown observe
in their chapter in the 1997 Anthology, successful
interventions require "a systematic reading of the political
complexion . . . and close contemplation of the main players
in the reform 'game' in terms of the depth of conflicts among
their values and interests and the prospects that they might
endorse an intervention that they can implement effectively."4
Foundations have not generally shown an aptitude for this,
and, moreover, legal strictures limit what they can do in
the governmental arena.
Beyond ascertaining the politics and the
players, systems reforms require an understanding of a complex
web of laws and regulations. Attempts to provide a seamless
net of health care services for homeless people in the Homeless
Families Program foundered, in part, on the number and the
complexity of the systems that needed to be reformed. Similarly,
a national program to integrate acute and long-term care for
older people not only had to shape multiple delivery systems
but also to coordinate two distinct and complicated government
programs, Medicare and Medicaid. In a classic understatement,
Joseph Alper and Rosemary Gibson observe in their chapter
for this year's Anthology that "making the financing
of acute and long-term care more rational has proven to be
challenging."
Although systems change may be important,
it should not be viewed as a panacea. Beginning in 1987, the
Foundation funded a series of programs to integrate services
for people with chronic mental illness. While the programs
were able to change the way mental health services were organized
and delivered in some communities, improved service delivery
did not necessarily lead to improved mental health. Rather,
the emphasis on improving delivery systems obscured the importance
of improving the quality of the services themselves. In other
words, inadequate services were being delivered in a more
efficient manner.
7. Investing
in People
One consistent insight emerging from the
Anthology series is the importance of investing in people
in order to bring about long-term improvements in the health
care system. From its earliest days, the Foundation has followed
a conscious strategy of building the health care field by
improving the capacities of those working in it. Since 1972,
the Foundation has been supporting the Clinical Scholars Program,
which gives physicians committed to academic careers the opportunity
to learn about the management, social, computer, and behavioral
sciences, and the Health Policy Fellowships Program, which
gives mid-career health professionals the opportunity to learn
about federal health policy processes by working for a year
in a Congressional office. Since the 1980s, its Minority Medical
Education Program has been giving qualified minority college
students the tools to become better medical school applicants,
and its Minority Medical Faculty Development Program has been
offering research fellowships and mentoring to promising minority
junior medical school faculty members. For more than two decades,
the Foundation has supported David Olds, whose research has
demonstrated the value of having nurses visit pregnant women
in their homes.
Although the notion is difficult to prove,
the Foundation's fellowship programs-and others that invest
in individuals-are widely considered to be among its successes.
They give capable people the wherewithal to take risks and
develop their abilities. As Lewis Sandy and Richard Reynolds
concluded in their analysis of academic medical centers in
last year's Anthology, "Investments in people pay off
. . . Supporting bright young people early in their career
may be a more effective institutional change strategy than
direct institutional grants."5
Their conclusion-expanded to include individuals of all ages-has
been echoed throughout the Anthology series.
8. Staying in for the Long Run
In its earlier years, the Foundation tended
to support programs for a limited number of years and then
move on to other endeavors. While this approach had the advantage
of allowing the Foundation to get things started and then
let others-usually the federal government-take them over,
it also had the potential disadvantage of a premature exit.
Authors of Anthology chapters have questioned whether the
Foundation moved away from nurse practitioners, public health
dentistry, and regional perinatal programs too early. While
nobody can reasonably expect that a program be continued forever,
The Robert Wood Johnson Foundation now takes a longer-term
view, in many cases supporting programs for a decade or more.
This gives institutions and individuals the chance to reach
a level of maturity that they might otherwise not have been
able to reach.
9. Maintaining
Flexibility
Even with the security given them by longer
funding cycles, programs need to adapt to changing circumstances.
Market forces have altered the course of many Foundation-funded
programs: for example, the Reach Out program to encourage
physicians to volunteer their services began just as managed
care reduced the free time of doctors, and the Strengthening
Hospital Nursing program attempted to increase hospital nurses'
responsibilities at a time when managed care was placing their
very jobs in jeopardy. Grantees have had to show great ingenuity
just to keep programs alive.
The mercurial nature of the health care
system affects the Foundation's strategies as well. Take the
evolution of its approach to managed care. As Janet Firshein
and Lewis Sandy observe later in this Anthology, the Foundation
was an early supporter of the nonprofit, staff-driven HMO
model that was developing in the 1970s and early 1980s. As
a for-profit entrepreneurial model came to dominate managed
care in the 1980s and 1990s, the Foundation's approach evolved
toward emphasizing quality control in HMOs, encouraging HMOs
to provide services for people with chronic illnesses and
addictions to tobacco and alcohol, and understanding better
the effects of managed care.
10. Respect for Grantees and Ownership
of Programs
The tenth and final lesson from the Anthology
series is the importance of treating grantees and potential
grantees with respect, involving them from the early stages
of project development, and encouraging program ownership.
In their attempt to discover why some Foundation-supported
programs to improve children's health seem to take hold and
others do not, Sharon Begley and Ruby Hearn conclude that
community ownership is a critical factor. "Without a feeling
that a community is guiding a program, there is no public
pressure to continue once the Foundation ends its support,"
they observe. Irene Wielawski noted in last year's Anthology
that the Local Initiative Funding Partners Program began as
one in which The Robert Wood Johnson Foundation exercised
considerable power over local foundations. In response to
the dissatisfaction this attitude caused among the local foundations,
The Robert Wood Johnson Foundation adopted an approach based
on mutually respectful relationships among the partners.6
The Robert Wood Johnson Foundation often
determines its strategic priorities and program designs after
extensive consultations with experts. For national programs,
it issues a "call for proposals" to which potential applicants
are invited to respond. At the same time, the Foundation often
holds workshops and meetings with potential applicants, whose
ideas are worked into the process even after a call for proposals
has been issued. Programs are carried out by the grantees,
usually with monitoring and technical support from a national
program office and counsel from a national advisory committee
of prominent experts. At its best, this process creates a
close and mutually respectful relationship between the Foundation
and its grantees; enriches the processes and context where
innovative ideas are generated, funded, evolved, and developed;
and gives grantees ownership of their programs.
In today's hyper-economy, with philanthropic
resources surging and new foundations dotting the landscape,
it is more important than ever that grant makers share their
experiences and learn from one another. The approaches pursued
by The Robert Wood Johnson Foundation offer one window into
promoting social change in a complex environment. While all
foundations are different and there is not necessarily a right
way to practice the craft of philanthropy, we hope the Anthology
series is, and will continue to be, a place to look for insights
that readers can adapt to their own circumstances.
San Francisco
Princeton, New Jersey
August 2000 |
Stephen
L. Isaacs
James R. Knickman
Editors |
Notes
1. S. A. Schroeder. "Core
Values of The Robert Wood Johnson Foundation." In S. L. Isaacs
and J. R. Knickman, (eds.), To Improve Health and Health Care
1998-1999: The Robert Wood Johnson Foundation. San Francisco:
Jossey-Bass, 1998. (return to article)
2. See chapter 1 by J.
M. McGinnis and S. A. Schroeder in this Anthology. (return
to article)
3. P. Brodeur. "School-Based
Health Clinics." In S. L. Isaacs and J. R. Knickman (eds.),
To Improve Health and Health Care 2000: The Robert Wood Johnson
Foundation Anthology. San Francisco: Jossey-Bass, 1999, p.
14. (return to article)
4. B. Stevens and L.
Brown, "Expertise Meets Politics: Efforts to Work with States."
In S. L. Isaacs and J. R. Knickman (eds.), To Improve Health
and Health Care 1997: The Robert Wood Johnson Foundation Anthology.
San Francisco: Jossey-Bass, 1997. (return to
article)
5. L. Sandy and R. Reynolds.
"Influencing Academic Health Centers: The Robert Wood Johnson
Foundation Experience." In S. L. Isaacs and J. R. Knickman
(eds.), To Improve Health and Health Care 1998-1999: The Robert
Wood Johnson Foundation Anthology. San Francisco: Jossey-Bass,
1998. (return to article)
6. I. Wielawski. "The
Local Initiative Funding Partners Program." In S. L. Isaacs
and J. R. Knickman(eds.), To Improve Health and Health Care
2000: The Robert Wood Johnson Foundation Anthology. San Francisco:
Jossey-Bass, 1999. (return to article)
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