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Section One: Access to Care
Expanding Health Insurance for Children
By Marguerite
Y. Holloway
Editors' Introduction
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The Foundation has long given high priority to improving
the health and well-being of children, although this
has never been articulated as one of its specific
goals. Over the past quarter century, it has awarded
almost nine thousand grants for these purposes. The
Foundation has funded regional perinatal networks,
large maternal-child health programs, community-based
substance abuse programs, and initiatives to reduce
childhood injuries--to name just a few. Some of the
Foundation-funded programs to improve children's access
to health care services have been discussed in the
Anthology series: school-based health clinics (2000
Anthology), mental health services for children (1998-1999
Anthology), and childhood immunization programs (1998-1999
Anthology).
In this chapter, Marguerite Holloway, a contributing
editor to Scientific American and an adjunct professor
at the Columbia University School of Journalism, examines
the Foundation's efforts to secure health insurance
for children whose parents do not have coverage
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Her chapter offers valuable lessons
for philanthropy and for public policy more generally.
It demonstrates the problems encountered in developing
programs in a complex and highly political environment,
the importance of foundations' maintaining the flexibility
to meet rapidly changing conditions, and the difficulty
of determining whether or not programs have been successful.
Healthy Kids is a good illustration of the last point.
This Florida program, designed to provide health insurance
to school children, was originally funded by a small
Foundation grant and later by state and federal funds.
It earned a coveted Innovations in American Government
Award from Harvard University and the Ford Foundation,
was widely emulated, and served as the model for a
Foundation-supported program that expanded the approach
to other states. At the same time, the program enrolled
only about 20 percent of the eligible children (a
high proportion of whom tended to be sicker than those
who didn't enroll, thus making it costly), did not
achieve its goal of self-sufficiency, and ultimately
abandoned the school-based model on which it had been
based. Readers will be able draw their own conclusions
about whether the program represents a successful
model for expanding insurance coverage or whether
it was conceptually flawed from the start. More generally,
readers are invited to consider how success should
be measured. If a program such as Healthy Kids is
able to provide a mechanism to insure some children
and improve the lives of their families but fails
to provide a workable model that can be adopted more
widely, is it a success or a failure? |
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Chapter 2
Karen Fulton has been caught
in the Bermuda Triangle of America's health care system. A
single mother in Fort Myers, Florida, she is considered too
well off to qualify as poor in the eyes of the state, and
yet she is too poor to ensure that her child is well off.
So Fulton has worked three or more jobs at a time to earn
less than $15,000 a year to make her car payments and to keep
James, age ten, clothed and fed and cared for. Sometimes a
job would provide her and her son with health insurance. But
for most of 1997, Fulton found herself without such coverage,
unable to afford insurance even for James. And although he
is a healthy child, Fulton was worried.
"I applied to Women, Infants, and Children,
and I didn't qualify," she says of the federal food supplement
program. "I felt it was because I came in with clothes that
didn't have holes in them. They would rather that someone
not work." Fulton's jobs made her and James ineligible for
any assistance, whether food stamps or Medicaid.
Last spring, James brought home a reprieve
in the form of a one-page document. His school had distributed
applications for a children's health insurance program that
was being started in Lee County. "You just fill out the form
at the beginning of the year," Fulton says. "They do a check
on you, verify your income, and you get to choose your doctor
from the packet." For $10 a month, Fulton now covers James
under the Florida Healthy Kids Corporation. The braces he
will need next year will cost Fulton $90 a month instead of
the $190 she was going to have to pay. She has been able to
quit her weekend job as a saleswoman at a nearby mall, and
now juggles only two jobs, cleaning offices and working as
a receptionist.
Although Fulton and some 940 other families
in Lee County have just signed up for insurance through the
Florida Healthy Kids Corporation, the program has been around
since 1990. The brainchild of researchers at the Institute
for Child Health Policy at the University of Florida, the
Florida Healthy Kids Corporation uses schools as a vehicle
to reach children without insurance. Families pay for coverage
on a sliding scale that is determined by their income, and
they are responsible for certain copayment s. The rest of
the money is provided by the federal and state governments
and by each participating county. As of late
1998, about sixty thousand children were enrolled, and thirty-four
of sixty-seven counties were involved.
HEALTH
INSURANCE COVERAGE OF CHILDREN
The Florida program, which The Robert Wood
Johnson Foundation helped establish and has funded since its
inception, was designed to help people like Fulton, who are
often stuck in the netherworld of the working poor. In a slow
but disturbing erosion, employers have increasingly shifted
away from providing coverage to employees and their dependents:
in 1990, more than 67 percent of workers obtained insurance
for themselves and their families through their employers;
in 1995, less than 64 percent did.1
Between 1988 and 1992, an estimated three
million children lost employer-based coverage.2
At the same time, those companies that still cover their
workers are reducing coverage, leaving many dependents without
insurance.
The result has led to a seeming paradox:
today, 57 percent of uninsured adults work full-time and another
20 percent part-time.3
In other words, those unable to afford coverage primarily
work in low-paying jobs--as waitresses, salespeople, attendants,
secretaries, receptionists, construction workers, farmers,
clerks, data processors. In terms of their own and their children's
health insurance, they are penalized for having jobs.
This trend not only has contributed to the
number of American adults without health insurance--estimated
at thirty-three million--but has affected their children as
well. In early 1996, nearly eleven million children 18 and
younger had no health coverage, and more than 80 percent of
them belonged to working families.4
This is reflected in the poor health of poor children. Children
lacking coverage are six times as likely to go without medical
care--including treatment for a serious injury--as their privately
insured counterparts. Low-income children are less likely
to get glasses, dental care, or help for mental health problems.5
They are more likely to have pneumonia, asthma, anemia,
and diarrhea.6
And they are five times more likely to rely on emergency
rooms as their regular source of care, because their caretakers
cannot afford preventive treatment.7
In emergencies, parents of uninsured children may delay
bringing them to an emergency room. By the
time they arrive, they are often in worse condition than they
would have been with prompt treatment.
THE FOUNDATION AND CHILDREN'S
HEALTH INSURANCE: A ROAD MAP
Improving the health of America's children
has been a priority of The Robert Wood Johnson Foundation
since its inception in 1972. Among the Foundation-funded programs
have been those that attempted to expand insurance coverage
for children. The first was the Healthy Kids Program, begun
in Florida in 1990. Although it improved services for the
children it insured, the program did not attract a significant
number of children. Nevertheless, as a result of its apparent
success, the Foundation established, in the mid-1990s, the
Healthy Kids Replication Program, which provided funding to
states that wanted to follow Florida's model. In 1997, following
the defeat of President Clinton's health reform plan, the
Foundation established a new nationwide effort, Covering Kids,
which focused on a different priority: finding children legally
entitled to Medicaid and ensuring that they received coverage.
In the midst of this, a huge federal initiative
completely changed the country's financial and philosophical
attitude toward the issue of coverage for children. Suddenly,
in the fall of 1997, massive amounts of money became available
to states through the State Children's Health Insurance Program
(CHIP). In this new environment, states needed guidance, and
the staff members of Covering Kids suddenly found themselves
in great demand--as did those working with a well-established
Robert Wood Johnson Foundation program called State Initiatives
in Health Care Reform. The Healthy Kids Replication Program,
however, became largely obsolete. In fact, the federal CHIP
money arrived just in time to mend huge structural cracks
that had appeared in some Healthy Kids programs.
The successes and shortcomings of the Foundation's
efforts to insure children shed light on the complicated relationship
between foundations and government initiatives. They also
raise an interesting question: Is the emphasis on covering
children rather than adults a good long-term strategy? In
this regard, the Foundation's focus has mirrored the country's.
In both spheres the choices could have important
implications for access to health care in the United States--for
children and for adults.
FLORIDA HEALTHY KIDS
The Florida Healthy Kids Corporation began
as a series of coincidences in the life of public health expert
Dr. Steve Freedman, executive director of the Institute for
Child Health Policy, a research group founded in 1986 at the
University of Florida. His daughter came home with a school
form that offered the Freedmans the option of buying accident
insurance for her in case she was hurt on school grounds.
That same week, Freedman himself received a flier from a professional
organization offering him major medical insurance. Freedman,
who, with his colleagues, had just been documenting the fact
that employer-provided private insurance was covering fewer
and fewer Florida children, was primed for the synchronicity.
He asked, "If businesses as a group were failing, why not
try to find another major grouping mechanism? Why not schools?"
Since two-thirds of uninsured Americans live in households
that have school-aged children, the idea was fortunate. To
many observers, it seemed to be the kind of simple solution
that is so obvious no one ever thinks of it.
Freedman wrote up his idea and sent it to
the New England Journal of Medicine. That 1988 essay8
led to calls of support and interest from people all over
the country. The same year, The Robert Wood Johnson Foundation--which
had already been supporting work at the Institute for Child
Health Policy--and the Maternal and Child Health Bureau of
the federal Department of Health and Human Services gave Freedman
and his team money to do a feasibility study. The researchers
were to find out whether schools could work as a way of grouping
kids--just as IBM and a union such as the United Auto Workers
group their members--in order to set up an inexpensive insurance
program.
The results of the feasibility study looked
promising, and things moved quickly. Just two years after
the original journal article, the Florida legislature unanimously
passed a law creating the Florida Healthy Kids Corporation.
This corporation would administer the program, meeting with
school district leaders and negotiating contracts with health
maintenance organizations and insurers. One idea that most
attracted the state government was the promise that in the
long term the costs for the entire program would be assumed
by the counties--which, in Florida, are the same as school
districts. Under Healthy Kids, families would buy insurance
from the public sector, and the state would, in large part,
subsidize the insurance premiums--but only over the short
term. As more and more families signed up, the reasoning was
that premium prices would fall and that the counties would
ultimately be able to pay all the costs of the program that
were not being met by the families. The approach appealed
to politicians looking to keep their fiscal outlays down.
"A lot of states were trying to do things for kids' health,
but our model was unique," says Rose Naff, executive director
of the corporation. "It deviated from the traditionally accepted
ways of providing coverage. It was not Medicaid, and it was
not Title V." (Title V refers to federally funded programs
to improve maternal and child health.)
Soon after the legislature established
the corporation in 1990, the Foundation gave Freedman and
his colleagues money to set up the administrative structure
of the project and to do a demonstration in one school district:
Volusia County, where about 25 percent of twelve thousand
school-aged kids were thought to be uninsured.9
"We picked a county that had all the characteristics of Florida,"
Freedman says. "A mix of urban and rural, of migrant workers
and service industry. The full socioeconomic spectrum."
The results of the pilot appeared positive--even
dramatic. Three years after Healthy Kids was initiated in
Volusia County, researchers in the county's tax department
determined that emergency room visits were down 70 percent.10
Although Freedman notes that reducing expensive emergency
room visits was not a specific goal of the Healthy Kids model,
it was anticipated. "The original goal was to be sure kids
had a 'medical home'--that they used appropriate health care,"
he says. "Embedded in that idea is less use of the ER." In
other words, the children were using a physician, not the
emergency room, as the source of their regular medical care.
The apparent success in Volusia County soon
led the corporation to expand the program, county by county.
It reached Karen Fulton's county at the beginning of 1998.
By the end of that year, about sixty thousand children between
age five and eighteen were enrolled. (Newborns and toddlers
are covered under another series of federal and state programs.)
The target, according to Naff, is 124,000 kids by the middle
of 1999. "It has been very positive," she says. "We are not
viewed as government in the eyes of the members. They have
real doctors. They like the twenty-four-hour access to care."
More important, their health care has improved.
According to a 1998 report by the Institute for Child Health
Policy--which has done almost all of the studies assessing
the corporation's impact on children's health--more than 98
percent of the families enrolled in the plan say that their
doctor or clinic, not the emergency room, is their primary
source of care.11
The report indicated that families are satisfied with the
Florida Healthy Kids Corporation plan because, as it notes,
"those without insurance often do not have a usual source
of care." Another study by researchers at the Institute for
Child Health Policy found that Florida Healthy Kids participants
were receiving the care that they needed and that administrators
and health care experts had anticipated they would need.12
In other ways, however, Florida Healthy
Kids has fallen short. First, it is voluntary, so many eligible
kids remain uninsured because their families don't want to
sign up. Naff argues that this is not a conceptual flaw in
the Healthy Kids model, because expecting 100 percent participation
in a voluntary program is unreasonable. Nevertheless, many
of Florida's kids have not been covered. Out of the state's
estimated 820,000 children who do not have health insurance,
270,000 are eligible for Medicaid, and 225,000 (half of the
remaining 550,000) could conceivably enroll in Healthy Kids,
according to Naff. So at the end of 1998 about 20 percent
of the children who could have been covered were enrolled
in Healthy Kids. The corporation set a goal of signing up
a total of 124,000 children by the middle of 1999--but without
more money from the state and federal government, Naff says,
Healthy Kids cannot expand further.
Second, the original program plan specified
that counties and families would gradually assume a greater
share of the costs, letting the state off the hook. But "the
problem was that the counties with money were the only ones
who could afford it [covering the health insurance premiums],"
says Jana Key, who recently left the Healthy Kids Corporation
to work at Georgia's PeachCare for Kids. "And the kids in
rural counties were still going uninsured."
"The shift to county-based funding didn't
seem to have any real hope of panning out without significant
taxes," notes Burton Edelstein, director of the Children's
Dental Health Project in Washington, D.C., who has worked
on children's health policy issues for Senator Thomas
A. Daschle. Florida Healthy Kids "was getting into difficulty
with the premiums, and the healthy kids were dropping out,"
Edelstein says. "There was adverse selection." In other words,
parents with ill children would participate, and those with
well children would stop buying the policy--until their children
got sick, and then they would enter the system again.
Adverse selection and the financial disparity
between the counties is part of the reason the corporation's
current financing looks very different from what it was supposed
to. The plan that the Florida state legislature endorsed in
1990 promised that counties would eventually pay for everything;
the state government would not be responsible. "The state
legislature was seeing in ten to fifteen years having no financial
liability," Key recalls. Until recently, however, 45 percent
of the financing came from the state, 37 percent from families,
and a mere 18 percent from the counties. Now, because of the
recent changes in federal funding for children's insurance,
Naff says that support for the roughly $90-million-a-year
program comes mostly from the federal government (specifically,
$37 million comes from the federal government, with about
$20 million coming from the state, $18 million from families,
$8 million from counties, and $7 million from the tobacco
settlement). Without this influx of federal money, Healthy
Kids would be limping along.
The school-grouping approach has also fallen
by the wayside. Although the school-based model worked initially,
Key says some counties were unhappy with it. These school
districts argued that schools were there to teach, not to
be involved in health care. So the corporation now uses an
additional, more traditional, means of outreach--advertising.
"We still distribute in schools--they are the best, number-one
place to find kids--but we no longer require that kids are
in school," Naff says. She sees this shift away from schools
as positive: "It has simplified our administration tremendously."
THE HEALTHY KIDS REPLICATION PROGRAM
From the outset, the Florida Healthy Kids
Corporation attracted national attention. Over the years,
staff members have talked to, advised, or given tours to people
from thirty-six states. The combination of private and public
funding was particularly attractive to some
legislatures, including those of Colorado, Georgia, Iowa,
Kansas, New Hampshire, and Texas. Each had its own take on
how the model could be altered to suit its particular social
or political makeup.
New Hampshire, for example, wanted a way
to insure kids that would not cost the state anything. Legislators
became interested in Florida Healthy Kids when child advocates
in New Hampshire invited Freedman to a seminar. It was just
after Volusia County had started to show results, and the
plan became interesting to the state government--if it could
undergo one major alteration. "It was sold in New Hampshire
as a plan that could potentially be self-funded," says Tricia
Brooks, executive director of the N ew Hampshire Healthy Kids
Corporation. Legislators "didn't want subsidies," she says.
"We are a low-tax, low-government state." In 1993, the state
approved New Hampshire Healthy Kids, but provided only $240,000
in seed money. When Brooks was hired in early 1994, she found
herself and her team on their own trying to figure out how
to make the program happen without any more government dollars.
"The first thing I did was go down to Florida to spend several
days learning what was working for them and plagiarizing as
much as I could," she says.
Despite what she learned, it has been tough
going in New Hampshire. Although Brooks and her colleagues
found that Blue Cross/Blue Shield was willing to donate administrative
costs and forgo profit in order to cover kids, the financing
did not work out. "We had enrolled 1,600 by the end of the
second year, so we thought we were doing pretty well," Brooks
says. But the dental provider had not anticipated how many
kids would visit the dentist, and the company suddenly found
that it had lost $100,000. The New Hampshire Healthy Kids
Corporation had to pass along some of the added costs to the
families, covering less dental care and requiring $250 in
deductibles for certain forms of care. Enrollment has evened
out at eighteen hundred, leaving another eight thousand or
so eligible for the program (an additional fifteen to twenty
thousand uninsured children are eligible for Medicaid). Thus,
the New Hampshire program enrolled about 20 percent of the
children it targeted. Brooks found that $50 a month was the
maximum that families could swing, and she was worried that
the program was not going to expand without outside financial
help.
Despite low enrollments, the Healthy Kids
approach was considered successful, and in 1996 the Florida
Healthy Kids Corporation received an Innovations in American
Government Award from Harvard University and the Ford Foundation.
By the mid-1990s, several states were attempting
to start programs of the Healthy Kids type, "but none were
statewide and none were completely comprehensive," says Jill
Meenan, a consultant for the Florida Healthy Kids Corporation.
"It was the perfect time to take the model and use it." In
response, The Robert Wood Johnson Foundation did just that:
it established the $3 million Healthy Kids Replication Program.
The National Program Office, formerly directed by Meenan,
began operating in 1996.
Meetings for applicants were held at the
beginning of 1997, and thirteen states initially applied.
The Foundation ultimately awarded planning grants to Colorado,
Georgia, and Iowa and implementation grants to New Hampshire
and Texas. Several--including Colorado, Georgia, and New Hampshire--were
already far along in their planning process, and the grants
essentially gave them a final boost. In addition, the National
Program Office provided technical assistance to states interested
in covering children and issued reports, including one on
how to establish a pediatric network and another on how to
issue a request for proposals for health insurers.
COVERING KIDS
At the same time that the Healthy Kids
Replication Program was getting under way, staff members at
The Robert Wood Johnson Foundation were considering ways to
cover uninsured children who did not need a program like Healthy
Kids. These were the millions of children who were eligible
for Medicaid but who were not signed up.
In July 1997, the Foundation approved the
creation of a new program, Covering Kids, which would fund
efforts to find low-income children who had fallen through
the cracks. "We have to remember that there are millions of
children--about 4.5 million--who are eligible for Medicaid
and are not enrolled," says Sarah Shuptrine, president of
the Southern Institute on Children and Families in South Carolina
and national program director of the Covering Kids program.
"The reasons for this failure are complicated." It could be
that the parents of these children are just recently off welfare
and don't know that their kids are still eligible for Medicaid;
it could be that they don't want to rely on government-sponsored
insurance because of the stigma; and it could be that the
application procedures are so Byzantine and humiliating that
they discourage parents from coming in.
Covering Kids also tried to simplify the
lives of parents by making the application process easier--but
still rigorous, so that it is not susceptible
to abuse--and thereby expand enrollment. "You have got to
make the process less burdensome and demeaning to parents,"
Shuptrine says. Further, because the Covering Kids National
Program Office will accept only one application per state,
it forces collaboration between all the groups advocating
for, or covering, children in that state. This eliminates
duplication and allows groups to see how difficult they are
making the process for parents and their children.
Just one month after Covering Kids was
approved, Congress passed the State Children's Health Insurance
Program (CHIP). Covering Kids suddenly found itself at the
center of a nationwide maelstrom, as state agencies hurriedly
tried to figure out how to create insurance programs for children,
how to expand Medicaid, how to find children eligible for
Medicaid, and how to get them enrolled. Within a year, Covering
Kids grew from a $13 million project designed to fund fifteen
states to a $47 million project that by January 1999 was supporting
programs throughout the United States.
THE STATE CHILDREN'S HEALTH INSURANCE
PROGRAM
For a big, political, bureaucratic initiative,
CHIP happened very quickly. President Clinton talked about
insuring children in his 1997 State of the Union Address,
several members of Congress picked up the charge, and by August
the country had a plan. In the early stages of their research,
politicians and their staff members examined the states that
had innovative approaches, Florida being among them. "When
everything was being designed at the federal level, there
was a need to show a way to do it," Georgia's PeachCare for
Kids' Jana Key explains. "Florida Healthy Kids showed that
there was a public response. We showed that families that
paid were more likely to access the service." Key notes that
many people did not want to sign up for Medicaid because of
the stigma of receiving a handout: "For the most part, people
really respect their dignity and their ability to provide
for their families."
Congress also examined the benefits of expanding
Medicaid, and what emerged from the deliberations was a law
that granted states great flexibility in their approach. This
flexibility acknowledged that a number of states--including
Florida, New York, Pennsylvania, Vermont, and Washington--already
had strong programs in place, and that the rest needed to
tailor expansion to their particular constituents.
Under CHIP, states can expand Medicaid, expand other programs,
design new ones, or create some combination of programs.
CHIP'S IMPACT ON THE FOUNDATION's
PROGRAMS
The passage of CHIP, which makes $48 billion
available over the next ten years, affected Covering Kids
and other Foundation-funded programs. Although Covering Kids
was designed before CHIP appeared, it seemed to be tailor-made.
The federal and state money goes primarily toward buying care
for children. Covering Kids goes toward finding them. "The
challenge is getting kids enrolled: this is the do-or-die
question right now," says Stan Dorn, an attorney at the National
Health Law Program.
Covering Kids was able to respond to rapidly
changing national policy, but the Healthy Kids Replication
Program found itself somewhat obsolete after CHIP. "It is
just not necessary now," says Jill Meenan, who was the national
program director for Healthy Kids. "So after this set of grants
finishes, I don't think that it will try to be a national
program anymore."
In a political landscape where few options
flourished for children, Healthy Kids provided a creative
model. "The replication strategy was a very smart move when
it was set up before CHIP," Dorn says. "But after CHIP, Florida
Healthy Kids didn't represent the high-water mark for children.
It was not all that children could get." Indeed, to a large
extent, CHIP bailed out the Florida program. "Luckily, CHIP
came around and provided the state with funds before it became
a huge problem," Key says.
CHIP also influenced the direction of some
activities under the State Initiatives in Health Care Reform
program. Since 1991, this program has sought to help states
that need policy advice when they seek to expand coverage.
Although the State Initiatives program is focused on coverage
for all Americans, it has "done several special things targeted
just at kids," notes Anne Gauthier, vice president of the
nonprofit Alpha Center, the National Program Office for State
Initiatives. For instance, a May 1997 report, "Expanding Children's
Coverage: Lessons from State Initiatives in Health Care Reform,"
reviews the approaches taken by nineteen states to cover uninsured
children in low-income families not covered by Medicaid. The
examination of the various strategies--Medicaid expansion,
state subsidies to children and families,
state subsidies to employers and their employees, tax incentives,
and vouchers--provides a road map for states.
When CHIP came along, State Initiatives
helped Oregon gather information and do planning and analysis
so the state could figure out how to mesh CHIP with its Family
Health Insurance Assistance Program without undermining employer-based
coverage. State Initiatives has been helpful to other states
trying to grapple with CHIP as well. "Since the advent of
CHIP, there has been a higher demand for technical assistance,
lots of monographs and meetings," Gauthier says. State Initiatives
"will help a state decide which kids to cover and how far
up the poverty scale. The point is that we help them with
the overall design."
CHIP also affected the direction of the
analyses undertaken, with Foundation support, by the Institute
of Medicine. In the summer of 1996, the Foundation awarded
a grant to the National Academy of Sciences to conduct a study
on the relationship between chil dren's health insurance and
access to health care. In the middle of preparing its report--"America's
Children: Health Insurance and Access to Care," which was
published in the summer of 1998--the Academy's Institute of
Medicine found itself grappling with CHIP. "Things were happening
so fast," says Margaret Edmunds, who directed the study and
who recently left the Institute of Medicine to join the Children's
Defense Fund. The sudden political change led the Institute
to do a second report, more narrowly focused on CHIP. This
report, "Systems of Accountability: Implementing Children's
Health Insurance Programs," was published in the fall of 1998
and outlined the potential pitfalls of CHIP.
CHILDREN AND THE FUTURE OF ACCESS
TO HEALTH CARE
Focusing on insuring children has been
a strategic choice for The Robert Wood Johnson Foundation,
one means to an end: to ensure that all Americans have access
to basic health care. Surveys--as well as the failure of President
Clinton's health care reform efforts--indicate that Americans
are not particularly concerned about the health or well-being
of their neighbors. But their neighbor's child seems to be
another matter13
By working to cover children, the Foundation determined that
it could help a group that was relatively inexpensive to
insure and that it could avoid the debate about whether the
uninsured deserved coverage or not. No one could argue that
kids weren't deserving. And by getting people to understand
the problems facing the nation's children, The Robert Wood
Johnson Foundation hoped to build up the public's interest
in the larger picture and the Foundation's ultimate goal:
providing access for everyone.
This approach--insuring children as both
an end in itself and as a springboard to broader coverage--is
controversial. Steve Freedman, of the Institute for Child
Health Policy at the University of Florida, agrees with this
approach for two reasons. First, he notes, there is some evidence
that children actually get better care if they are the focus
of a health care plan rather than tagalongs in an adult plan.
"When you mix kids and adults in the insurance world, kids
come out on the wrong end of the stick," Freedman says. Second,
he argues that children are the key to future attitudes toward
health insurance. "If we raise a generation of insured children,
they will see health insurance in the same way that we see
public schools: it will become part of the social fabric,"
he says. "They will never have been without insurance."
But whether starting with children will
prove to be the easiest means to this end remains the subject
of strong debate. "I think the jury is out on that," counters
Anne Gauthier of the Alpha Center. "There is the argument
that if we expand coverage for kids there would not be any
momentum to do anything else. And the states that have expanded
insurance for kids are thinking that they need to do parents
as well." D'Anne Gilmore, former deputy administrator of the
Oregon Health Plan, agrees with Gauthier. She explains that
she used to be a strong advocate for expanding coverage for
children first and foremost--and that she butted heads with
the governor on this issue. "He felt that we should not segment
people into worthy and unworthy categories," she recalls.
"His view was that everyone should have publicly financed
coverage." Gilmore now thinks the governor was right--in Oregon,
at least. "If you take care of the adults, the kids get taken
care of, and that was counter to my logic," she says. "We
found that if you could plug a family into things, then the
kids were much more likely to get care. If it was only focused
on kids, then participation dropped."
However the story unfolds, The Robert Wood
Johnson Foundation will continue to look at all possibilities--for
children and for uninsured adults. It is not putting all its
eggs in one basket, says Pamela S. Dickson,
a senior program officer at the Foundation, but, rather, is
operating on the principle that, if you cast a thousand seeds,
a few will bloom.
Notes
1. J. A. Meyer and D. H. Naughton. "Who's
Saying No to Uninsured Kids? Health Insurance Coverage for
Children." Business & Health, 1997, 15(3), 33. (return
to article)
2. P. W. Newacheck and others. "Children
and Health Insurance: An Overview of Recent Trends." Health
Affairs, 1995, 14(1), 244-254; and S. Rosenbaum and others,
Providing Universal Health Insurance Coverage to Children:
Four Perspectives. Washington, D.C.: George Washington University,
1996. (return to article)
3. L. J. Blumberg and D. W. Liska. The
Uninsured in the United States: A Status Report. Washington,
D.C.: Urban Institute, 1996. (return to article)
4. M. E. Weigers, R. M. Reinick, and
J. W. Cohen. Children's Health 1996: MEPS Chartbook Number
1 (Publication Number 98-0008). Rockville, Md.: Agency for
Health Care Policy and Research, 1998; and Institute of Medicine.
America's Children: Health Insurance and Access to Care. Washington,
D.C.: Institute of Medicine, 1998. This report also makes
it clear that proportionally more minority children are without
health insurance: one in four Hispanic children and one in
six African American lack health coverage, as opposed to o
ne in ten white children. (return to article)
5. G. Simpson and others. "Access to
Health Care, Part 1: Children." Vital Health Statistics, 1997,
10(196), 1-46. (return to article)
6. A. Sherman. Wasting America's Future:
The Children's Defense Fund Report on the Costs of Child Poverty.
Boston: Beacon Press, 1994. (return to article)
7. B. J. Stussman. National Hospital
Ambulatory Medical Care Survey: 1995 Emergency Department
Summary. Advance data from Vital Health Statistics 285. Hyattsville,
Md.: National Center for Health Statistics, 1997. (return
to article)
8. S. A. Freedman and others. "Coverage
of the Uninsured and Underinsured: A Proposal for School Enrollment-Based
Family Health Insurance." New England Journal of Medicine,
1988, 318(13), 843-847. (return to article)
9. E. Shenkman and others. "The School
Enrollment-Based Health Insurance Program: Socioeconomic Factors
in Enrollees Use of Health Services." American Journal of
Public Health, 1996, 86(12), 1,791-1,793. (return
to article)
10. S. Freedman, E. Shenkman, and R. Naff.
Personal communication, 1998. (return to article)
11. E. Shenkman and others. Family
Satisfaction with the Healthy Kids Program: Executive Summary
Prepared for the Florida Healthy Kids Corporation. Gainesville,
Fla.: Institute for Child Health Policy, 1998. (return
to article)
12. E. Shenkman and others. "Children's
Heath Care Use in the Healthy Kids Program." Pediatrics, 1997,
100(6), 947-953. (return to article)
13. M. Rothman. Defining a Grant
Making Strategy on the Working Uninsured Issue: Report to
The Robert Wood Johnson Foundation. Princeton, N.J.: The Robert
Wood Johnson Foundation, 1998. According to the same report,
52 percent of Americans surveyed think that children should
be the focus of any limited efforts on the part of the government
to increase coverage. Only 19 percent felt uninsured working
people were so deserving. (return to article)
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