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Privacy and Confidentiality

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  • Topic: Privacy and confidentiality
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What's Next Health: Jake Porway

May 15, 2013 | Story/Video

The What's Next Health series features leading thinkers and visionaries. Jake Porway, a data scientist and machine-learning enthusiast, talks about big data.

Advancing the Role of Rapid Learning in Mainstream Health Care

March 25, 2013 | Program Result

Developing and promoting a rapid-learning health system, in which health information in large databases is analyzed to improve health care - the work of Lynn Etheredge and the Health Insurance Reform Project at George Washington University.

Highlights of the Final Omnibus HIPAA Rule

January 30, 2013 | Issue Brief

This brief details changes to the federal rule implementing modifications to the Health Insurance Portability and Accountability Act (HIPAA).

A Patient's View of OpenNotes

October 2, 2012 | Journal Article

The authors discuss the positive outcomes from a year-long experimental study, OpenNotes, where patients could access their doctor’s notes.

Pushing the Envelope of Electronic Patient Portals to Engage Patients

October 2, 2012 | Journal Article

This editorial discusses OpenNotes, an experiment where patients were allowed to access their primary care providers’ electronic notes via patient portals.

Inviting Patients to Read Their Doctors' Notes

October 2, 2012 | Journal Article

This article could help drive a culture of more transparency between patients and providers, enabling two-way communication that levels the proverbial playing field.

Making Sense of Mobile Health Data

August 9, 2012 | Journal Article

Mobile phones, and smartphones in particular, have the potential to support chronic disease prevention and management in daily life. For example, mobile health (mHealth) applications can help people manage their diabetes, assist in smoking cessation ...

Physicians and Social Media: First, Do No Harm.

July 27, 2012 | Human Capital Blog Post

The boards also answered questions about how they handled the violations. Fifty-six percent of the boards said physician misconduct online led to serious disciplinary outcomes—license to practice was either restricted, suspended, or revoked. My coll ...

Evaluating the Impact of Patients' Online Access to Doctors' Visit Notes

April 13, 2012 | Journal Article

The authors conducted a one-year, multi-site trial of patient-accessible online office visit notes system OpenNotes, and found that many primary care physicians were willing to participate.

Many Physicians Failing Social Media 101

March 28, 2012 | Story

State medical boards report an increase in reports of doctors behaving badly online. A grantee works to identify problems and develop Internet guidelines for medical professionals.

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