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Personal Health Records

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  • Topic: Personal health records
  • Topic: Privacy and confidentiality
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Evaluating the Impact of Patients' Online Access to Doctors' Visit Notes

April 13, 2012 | Journal Article

The authors conducted a one-year, multi-site trial of patient-accessible online office visit notes system OpenNotes, and found that many primary care physicians were willing to participate.

Patient Interest in Sharing Personal Health Record Information

December 20, 2011 | Journal Article

A large-scale study of veterans suggests that most PHR users are interested in sharing access to their electronic health records.

Patients Ready to Share Information

December 19, 2011 | Story

Related websites RWJF Clinical Scholars RWJF Scholars, Fellows and Leadership programs A survey of patients who use an electronic system to manage their personal health information found that most would like to share access to this system with other ...

Rethinking the Power and Potential of Personal Health Records

January 1, 2009 | Report

This report from Project HeathDesign captures key learnings from the work of the program's first nine grantee teams, as well as from its efforts to develop a common platform and explore the ethical, legal and social issues tied to next-generation personal health records (PHRs).

Reconciling Privacy Laws and Public Health Surveillance

May 28, 2009 | Program Result

The Council of State and Territorial Epidemiologists provided guidance to help public health practitioners understand how privacy laws at the federal, state and local level, affect the performance of essential public health activities.

Advancing the Role of Rapid Learning in Mainstream Health Care

March 25, 2013 | Program Result

Developing and promoting a rapid-learning health system, in which health information in large databases is analyzed to improve health care - the work of Lynn Etheredge and the Health Insurance Reform Project at George Washington University.

A Patient's View of OpenNotes

October 2, 2012 | Journal Article

The authors discuss the positive outcomes from a year-long experimental study, OpenNotes, where patients could access their doctor’s notes.

Pushing the Envelope of Electronic Patient Portals to Engage Patients

October 2, 2012 | Journal Article

This editorial discusses OpenNotes, an experiment where patients were allowed to access their primary care providers’ electronic notes via patient portals.

Making Sense of Mobile Health Data

August 9, 2012 | Journal Article

Mobile phones, and smartphones in particular, have the potential to support chronic disease prevention and management in daily life. For example, mobile health (mHealth) applications can help people manage their diabetes, assist in smoking cessation ...

Debate

February 1, 2012 | Commentary

Will OpenNotes help patients become true partners in their case?

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