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Personal Health Records

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Advancing the Role of Rapid Learning in Mainstream Health Care

March 25, 2013 | Program Result Report

Developing and promoting a rapid-learning health system, in which health information in large databases is analyzed to improve health care - the work of Lynn Etheredge and the Health Insurance Reform Project at George Washington University.

African Americans and Latinos Worry about Confidentiality of Electronic Health Records

April 20, 2009 | Program Result Report

Mathematica Policy Research conducted three focus groups with African Americans and Latinos to gauge their knowledge of and thoughts about personal health records.

A Method to Implement Fine-Grained Access Control for Personal Health Records Through Standard Relational Database Queries

October 1, 2010 | Journal Article

Patients with online personal health records want to control access to their information in precise, detailed ways. But the system must be responsive and no more complex than necessary to provide. This paper details one data system method.

Annotated Bibliography

November 15, 2009 | Book

The Power and Potential of Personal Health Records

A Patient's View of OpenNotes

October 2, 2012 | Journal Article

The authors discuss the positive outcomes from a year-long experimental study, OpenNotes, where patients could access their doctor’s notes.

A "Rapid-Learning" Health Care System

January 18, 2007 | Story

As more patient data is housed in electronic health records, and the power of the Internet and computing systems continue to grow, experts believe the U.S. can create a national system of real-time reporting.

Better Data = Better Health: Farzad Mostashari Q&A

Story

A Conversation with Farzad Mostashari, National Coordinator for Health Information Technology, U.S. Department of Health and Human Services.

Better Data = Better Health: Thomas Goetz Q&A

Story

A Conversation with Thomas Goetz, Executive Editor, WIRED Magazine.

$19-Billion stimulus infusion good start, but researchers warn steep climb ahead to get hospitals to go digital.

March 25, 2009 | News Release/Video

Contrary to conventional wisdom, only a tiny fraction of U.S. hospitals have full health information technology (HIT) systems in place to improve how they deliver care, says the New England Journal of Medicine in the March 26 online edition.

Blue Button: Driving a Patient-Centered Revolution in Health Care

September 13, 2011 | Pioneering Ideas Blog Post

Editor's note: This post originally appeared 9/13/2011 at the Huffington Post. A lot can happen in a year. Last October, I wrote about a promising new offering for people looking to take control of their own health and health care decisions. Known a ...

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