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Patient Concerns

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Preservation of the Capacity to Appoint a Proxy Decision Maker

February 1, 2011 | Journal Article

Alzheimers researchers face the ethical question of how to obtain consent from patients whose decision-making is impaired. This study compared the ability of Alzheimers patients to provide their own consent to their capacity to appoint a research proxy.

In the Media: Advocates Say Media Portrayals of Nurses Matter

November 23, 2009 | Story

Advocates say media portrayals of nurses matter.

Adolescents' Needs for Health Care Privacy

December 1, 2010 | Journal Article

A study of adolescents' privacy preferences in a health care setting found that adolescents value psychological, social, physical and informational privacy, and recommended that providers consider all aspects of privacy when caring for adolescents.

ACA Implementation - Monitoring and Tracking Series: Quantitative Analysis

February 23, 2012 | Report

The Urban Institute produces a series of reports documenting coverage trends across the country.

Conference Attendees Outline Ways to Promote Patient Advocacy

December 1, 2004 | Program Result

The University of North Carolina at Chapel Hill School of Public Health, Department of Health Behavior and Health Education, sponsored a two-day conference designed to discuss patient advocacy as an emerging field of public health.

Understanding Public Distrust of Health Care

January 31, 2008 | Story

For David T. Grande, MD, MPA, Robert Wood Johnson Foundation Health & Society Scholars provided a bridge to academia.

RWJF Awards $1.9 Million Grant to PatientsLikeMe to Create World’s First Open Research Platform to Develop Patient-Centered Health Outcome Measurements

February 25, 2013 | News Release

PatientsLikeMe has been awarded a $1.9 million grant from RWJF to create the world's first open-participation research platform for the development of patient-centered health outcome measures.

PatientsLikeMe Project Pioneers Use of Outcomes Data That Are Meaningful To Patients

February 25, 2013 | Pioneering Ideas Blog Post

Jamie Heywood, co-founder of PatientsLikeMe, and Paul Tarini, senior program officer of the Pioneer Team at RWJF, share their views on creating an open-access platform to develop measures that matter to patients.

Depressive Symptoms and Perceived Doctor-Patient Communication in the Heart and Soul Study

May 1, 2009 | Journal Article

This article examines the relationship between depression and perceived communication quality between patients and doctors. Interactions between physicians and patients are an important component of health care quality, and little is known about whether depression influences patients' perceptions of communication quality.

Patterns and Determinants of Inappropriate Antibiotic Use in Injection Drug Users

February 1, 2009 | Journal Article

Inappropriate patterns of antibiotic use are highly prevalent among injection drug users. This qualitative study constitutes initial research towards developing an intervention to improve antibiotic use behaviors. The study recruited focus group participants from syringe exchange facilities in Philadelphia.

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