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Health Records

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African Americans and Latinos Worry about Confidentiality of Electronic Health Records

April 20, 2009 | Program Result

Mathematica Policy Research conducted three focus groups with African Americans and Latinos to gauge their knowledge of and thoughts about personal health records.

A Health Care Identifier for Each Patient

October 29, 2012 | Program Result

Researchers at Western Health Information Network demonstrated the technical feasibility of using a voluntary universal health care identifier card to link each person with their health record.

A Method to Implement Fine-Grained Access Control for Personal Health Records Through Standard Relational Database Queries

October 1, 2010 | Journal Article

Patients with online personal health records want to control access to their information in precise, detailed ways. But the system must be responsive and no more complex than necessary to provide. This paper details one data system method.

A Patient's View of OpenNotes

October 2, 2012 | Journal Article

The authors discuss the positive outcomes from a year-long experimental study, OpenNotes, where patients could access their doctor’s notes.

A "Rapid-Learning" Health Care System

January 18, 2007 | Story

As more patient data is housed in electronic health records, and the power of the Internet and computing systems continue to grow, experts believe the U.S. can create a national system of real-time reporting.

$19-Billion stimulus infusion good start, but researchers warn steep climb ahead to get hospitals to go digital.

March 25, 2009 | News Release/Video

Contrary to conventional wisdom, only a tiny fraction of U.S. hospitals have full health information technology (HIT) systems in place to improve how they deliver care, says the New England Journal of Medicine in the March 26 online edition.

Bolstering Electronic Health Records at Four Community Health Centers in Chicago with Race, Ethnicity and Language Data

July 1, 2009 | Program Result

The Health Research and Educational Trust collected and integrated information on patients' race/ethnicity, primary language and socioeconomic status into an electronic health record system, and linked that information with clinical performance measures.

Building Big Data, One Swab at a Time

March 14, 2013 | Pioneering Ideas Blog Post

PBS NewsHour recently featured Pioneer grantee Kaiser biobank. In her blog post, Nancy Barrand shares how Pioneer first became involved with Kaiser's biobank.

Collecting Data on Patient Race, Ethnicity and Primary Language to Help Hospitals Improve Quality of Care

June 4, 2008 | Toolkit/Story

Expecting Success, the nation's first multihospital collaborative focused on reducing disparities, helped 10 hospitals measure the quality of cardiac treatment they provide to patients based on their race, ethnicity and primary language.

Colorado Care Tablet

October 1, 2010 | Journal Article

A Personal Health Application running on a tablet PC and using simple navigation, touch screens, and artifacts and workflows based on everyday life, can help older Americans and lay caregivers with limited computing experience manage medications, particularly during care transitions.

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