April 20, 2009
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Program Result
Mathematica Policy Research conducted three focus groups with African Americans and Latinos to gauge their knowledge of and thoughts about personal health records.
October 29, 2012
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Program Result
Researchers at Western Health Information Network demonstrated the technical feasibility of using a voluntary universal health care identifier card to link each person with their health record.
October 1, 2010
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Journal Article
Patients with online personal health records want to control access to their information in precise, detailed ways. But the system must be responsive and no more complex than necessary to provide. This paper details one data system method.
October 2, 2012
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Journal Article
The authors discuss the positive outcomes from a year-long experimental study, OpenNotes, where patients could access their doctor’s notes.
January 18, 2007
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Story
As more patient data is housed in electronic health records, and the power of the Internet and computing systems continue to grow, experts believe the U.S. can create a national system of real-time reporting.
March 25, 2009
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News Release/Video
Contrary to conventional wisdom, only a tiny fraction of U.S. hospitals have full health information technology (HIT) systems in place to improve how they deliver care, says the New England Journal of Medicine in the March 26 online edition.
July 1, 2009
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Program Result
The Health Research and Educational Trust collected and integrated information on patients' race/ethnicity, primary language and socioeconomic status into an electronic health record system, and linked that information with clinical performance measures.
March 14, 2013
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Pioneering Ideas Blog
Post
PBS NewsHour recently featured Pioneer grantee Kaiser biobank. In her blog post, Nancy Barrand shares how Pioneer first became involved with Kaiser's biobank.
June 4, 2008
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Toolkit/Story
Expecting Success, the nation's first multihospital collaborative focused on reducing disparities, helped 10 hospitals measure the quality of cardiac treatment they provide to patients based on their race, ethnicity and primary language.
October 1, 2010
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Journal Article
A Personal Health Application running on a tablet PC and using simple navigation, touch screens, and artifacts and workflows based on everyday life, can help older Americans and lay caregivers with limited computing experience manage medications, particularly during care transitions.