PatientsLikeMe
February 25, 2013 | Grantee
PatientsLikeMe is an established network for patients who want to monitor their health, improve their outcomes, and contribute to medical research and discovery.
E-Patients
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RWJF Awards $1.9 Million Grant to PatientsLikeMe to Create World’s First Open Research Platform to Develop Patient-Centered Health Outcome Measurements
February 25, 2013 | News Release
PatientsLikeMe has been awarded a $1.9 million grant from RWJF to create the world's first open-participation research platform for the development of patient-centered health outcome measures.
PatientsLikeMe Project Pioneers Use of Outcomes Data That Are Meaningful To Patients
February 25, 2013 | Pioneering Ideas Blog Post
Jamie Heywood, co-founder of PatientsLikeMe, and Paul Tarini, senior program officer of the Pioneer Team at RWJF, share their views on creating an open-access platform to develop measures that matter to patients.
Advancing the Field of Health Games
March 31, 2011 | Program Result
Progress and lessons learned from two programs that seek to advance the impact digital games can have on health.
Advancing the Role of Rapid Learning in Mainstream Health Care
March 25, 2013 | Program Result
Developing and promoting a rapid-learning health system, in which health information in large databases is analyzed to improve health care - the work of Lynn Etheredge and the Health Insurance Reform Project at George Washington University.
A Patient's View of OpenNotes
October 2, 2012 | Journal Article
The authors discuss the positive outcomes from a year-long experimental study, OpenNotes, where patients could access their doctor’s notes.
Pushing the Envelope of Electronic Patient Portals to Engage Patients
October 2, 2012 | Journal Article
This editorial discusses OpenNotes, an experiment where patients were allowed to access their primary care providers’ electronic notes via patient portals.
Inviting Patients to Read Their Doctors' Notes
October 2, 2012 | Journal Article
This article could help drive a culture of more transparency between patients and providers, enabling two-way communication that levels the proverbial playing field.
Making Sense of Mobile Health Data
August 9, 2012 | Journal Article
Mobile phones, and smartphones in particular, have the potential to support chronic disease prevention and management in daily life. For example, mobile health (mHealth) applications can help people manage their diabetes, assist in smoking cessation ...
Evaluating the Impact of Patients' Online Access to Doctors' Visit Notes
April 13, 2012 | Journal Article
The authors conducted a one-year, multi-site trial of patient-accessible online office visit notes system OpenNotes, and found that many primary care physicians were willing to participate.