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E-Patients

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Advancing the Role of Rapid Learning in Mainstream Health Care

March 25, 2013 | Program Result

Developing and promoting a rapid-learning health system, in which health information in large databases is analyzed to improve health care - the work of Lynn Etheredge and the Health Insurance Reform Project at George Washington University.

RWJF Awards $1.9 Million Grant to PatientsLikeMe to Create World’s First Open Research Platform to Develop Patient-Centered Health Outcome Measurements

February 25, 2013 | News Release

PatientsLikeMe has been awarded a $1.9 million grant from RWJF to create the world's first open-participation research platform for the development of patient-centered health outcome measures.

PatientsLikeMe Project Pioneers Use of Outcomes Data That Are Meaningful To Patients

February 25, 2013 | Pioneering Ideas Blog Post

Jamie Heywood, co-founder of PatientsLikeMe, and Paul Tarini, senior program officer of the Pioneer Team at RWJF, share their views on creating an open-access platform to develop measures that matter to patients.

PatientsLikeMe

February 25, 2013 | Grantee

PatientsLikeMe is an established network for patients who want to monitor their health, improve their outcomes, and contribute to medical research and discovery.

A Patient's View of OpenNotes

October 2, 2012 | Journal Article

The authors discuss the positive outcomes from a year-long experimental study, OpenNotes, where patients could access their doctor’s notes.

Pushing the Envelope of Electronic Patient Portals to Engage Patients

October 2, 2012 | Journal Article

This editorial discusses OpenNotes, an experiment where patients were allowed to access their primary care providers’ electronic notes via patient portals.

Inviting Patients to Read Their Doctors' Notes

October 2, 2012 | Journal Article

This article could help drive a culture of more transparency between patients and providers, enabling two-way communication that levels the proverbial playing field.

Making Sense of Mobile Health Data

August 9, 2012 | Journal Article

Mobile phones, and smartphones in particular, have the potential to support chronic disease prevention and management in daily life. For example, mobile health (mHealth) applications can help people manage their diabetes, assist in smoking cessation ...

Evaluating the Impact of Patients' Online Access to Doctors' Visit Notes

April 13, 2012 | Journal Article

The authors conducted a one-year, multi-site trial of patient-accessible online office visit notes system OpenNotes, and found that many primary care physicians were willing to participate.

Debate

February 1, 2012 | Commentary

Will OpenNotes help patients become true partners in their case?

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