Empowering Patients
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Transparency, public reporting, and new models of patient-centered care could help patients reach better outcomes, at lower cost.
E-Patients
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White Paper Describes How "E-Patients" Using Internet Resources are Transforming the American Health Care System
March 1, 2008 | Program Result
Tom Ferguson, M.D., a pioneer in the field of online health, worked with a group of researchers, developers and leaders in the field to develop a white paper on e-patients and their impact on health care and medicine.
PatientsLikeMe
February 25, 2013 | Grantee
PatientsLikeMe is an established network for patients who want to monitor their health, improve their outcomes, and contribute to medical research and discovery.
RWJF Awards $1.9 Million Grant to PatientsLikeMe to Create World’s First Open Research Platform to Develop Patient-Centered Health Outcome Measurements
February 25, 2013 | News Release
PatientsLikeMe has been awarded a $1.9 million grant from RWJF to create the world's first open-participation research platform for the development of patient-centered health outcome measures.
PatientsLikeMe Project Pioneers Use of Outcomes Data That Are Meaningful To Patients
February 25, 2013 | Pioneering Ideas Blog Post
Jamie Heywood, co-founder of PatientsLikeMe, and Paul Tarini, senior program officer of the Pioneer Team at RWJF, share their views on creating an open-access platform to develop measures that matter to patients.
Advancing the Field of Health Games
March 31, 2011 | Program Result
Progress and lessons learned from two programs that seek to advance the impact digital games can have on health.
Better Data = Better Health: Farzad Mostashari Q&A
Story
A Conversation with Farzad Mostashari, National Coordinator for Health Information Technology, U.S. Department of Health and Human Services.
Advancing the Role of Rapid Learning in Mainstream Health Care
March 25, 2013 | Program Result
Developing and promoting a rapid-learning health system, in which health information in large databases is analyzed to improve health care - the work of Lynn Etheredge and the Health Insurance Reform Project at George Washington University.
A Patient's View of OpenNotes
October 2, 2012 | Journal Article
The authors discuss the positive outcomes from a year-long experimental study, OpenNotes, where patients could access their doctor’s notes.
Pushing the Envelope of Electronic Patient Portals to Engage Patients
October 2, 2012 | Journal Article
This editorial discusses OpenNotes, an experiment where patients were allowed to access their primary care providers’ electronic notes via patient portals.