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Data and Data Collection

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  • Topic: Data and data collection
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Data Governance and Stewardship

October 1, 2010 | Journal Article

This article evaluates the role of governance and stewardship in improving access to health care data. Data stewardship presents a possible solution to the struggle between privacy and access concerns about health care information.

Project Shares Data Archives of RWJF-Supported Research

November 1, 2004 | Program Result

Since March 1985, staff of the Inter-University Consortium for Political and Social Research (ICPSR) at the University of Michigan Institute for Social Research, Ann Arbor, Mich., has prepared, archived, and disseminated data collections created through grantmaking by the Robert Wood Johnson Foundation (RWJF).

Harvard Updates Health Data Book to Reflect Current Issues

September 1, 2002 | Program Result

News & Numbers: A Guide to Reporting Statistical Claims and Controversies in Health and Other Fields, a widely used 1989 book by Victor Cohn aimed at helping journalists understand and report on data in the health fields and other fields, was revised and expanded between 1998 and 1999.

Conferences Discuss How to Improve Health Data Survey Collection Methods

December 26, 2002 | Program Result

The University of Illinois at Chicago held two conferences on health survey research methods, one in 1995 and another in 1999.

Journal Provides Practical Advice for Data Safety Monitoring in Research Involving Human Subjects

July 1, 2006 | Program Result

The American Federation for Medical Research developed and published a supplement to the Journal of Investigative Medicine that provides practical advice about developing data and safety monitoring plans for research involving human subjects.

State of Arkansas Collects, Disseminates New Health Data

May 1, 1999 | Program Result

From 1992 to 1997, the Arkansas Health Resources Commission (formerly the Arkansas Interagency Working Group or IWG) and the Governor's Task Force on Health Care Reform identified health information key to health care reform in the state.

West Virginia Assesses 85 Health Databases, Recommends Changes

May 1, 1999 | Program Result

During 1992 and 1993, the West Virginia's Information for State Health Policy (InfoSHP) project brought together a State Health Policy Task Force that met monthly and continues to meet quarterly.

Information for State Health Policy

May 1, 1999 | Program Result

Information for State Health Policy was a program charged with improving the capacity of state health statistics systems to support policymaking, as well as aiding in program development and management.

Connecticut Highlights Need for Data on Maternal and Child Health

May 1, 1999 | Program Result

During 1992 and 1993, a 25-member Interagency Work Group (IWG), under the leadership of the under secretary of Connecticut's Office of Policy and Management, sought to improve the state's health statistics in order to focus more clearly on the area of maternal and child health.

California Improves Usefulness of Health Data

May 1, 1999 | Program Result

From 1992 to 1997, the California Health Information for Policy Project (CHIPP) sought to enrich the state's health information, particularly in the area of primary care.

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