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Data and Data Collection

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RWJF DataHub

Feature

The RWJF DataHub tracks state-level data, and allows visitors to customize and visualize facts and figures.

PatientsLikeMe

February 25, 2013 | Grantee

PatientsLikeMe is an established network for patients who want to monitor their health, improve their outcomes, and contribute to medical research and discovery.

Living By Numbers Conference - October 15-16, 2012

Feature

On October 15 and 16, 2012, WIRED and the Robert Wood Johnson Foundation hosts conversation on the future of healthcare with 200 expert leaders from the worlds of medicine, science, technology, and business.

Quantified Self

January 30, 2013 | Grantee

Promoting self-knowledge through self-tracking.

Better Data = Better Health: Thomas Goetz Q&A

Story

A Conversation with Thomas Goetz, Executive Editor, WIRED Magazine.

Better Data=Better Health: A Conversation with RWJF’s Steve Downs

Story

The inaugural conference, convened by WIRED and the Robert Wood Johnson Foundation (RWJF), featured speakers from across sectors who talked about how data is helping individuals and physicians manage care on a more personal level than ever before.

RWJF Awards $1.9 Million Grant to PatientsLikeMe to Create World’s First Open Research Platform to Develop Patient-Centered Health Outcome Measurements

February 25, 2013 | News Release

PatientsLikeMe has been awarded a $1.9 million grant from RWJF to create the world's first open-participation research platform for the development of patient-centered health outcome measures.

PatientsLikeMe Project Pioneers Use of Outcomes Data That Are Meaningful To Patients

February 25, 2013 | Pioneering Ideas Blog Post

Jamie Heywood, co-founder of PatientsLikeMe, and Paul Tarini, senior program officer of the Pioneer Team at RWJF, share their views on creating an open-access platform to develop measures that matter to patients.

Community-Level Interventions to Collect Race/Ethnicity and Language Data to Reduce Disparities

September 1, 2012 | Journal Article

This paper examines the experience of 14 Aligning Forces for Quality (AF4Q) alliances (data from additional alliances that joined the AF4Q initiative in 2009-2010 are not included in this analysis). This study’s target population included AF4Q allia ...

Pioneering Idea: Your Patient’s Community Health Needs Assessment on the Desktop

December 21, 2012 | Pioneering Ideas Blog Post

Ted Eytan discusses a new community health assessment platform.

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