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Clinical Research

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  • Topic: Clinical research
  • Topic: Patient-centered care/family-centered care
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Advancing the Role of Rapid Learning in Mainstream Health Care

March 25, 2013 | Program Result Report

Developing and promoting a rapid-learning health system, in which health information in large databases is analyzed to improve health care - the work of Lynn Etheredge and the Health Insurance Reform Project at George Washington University.

Incubating Innovation in U.S. Health Care Policy

January 11, 2012 | Story

Lynn Etheredge's Ideas Facilitate Policy to Improve Quality and Reduce Costs.

Medicare's Future

January 1, 2009 | Journal Article

This paper proposes a national initiative for Medicare patients with cancer. New legislative authority will be needed for comparative effectiveness research, quality measurement and payment reforms in Medicare.

PatientsLikeMe

February 25, 2013 | Grantee

PatientsLikeMe is an established network for patients who want to monitor their health, improve their outcomes, and contribute to medical research and discovery.

PatientsLikeMe Calls For Researcher Participation in New Open Research Exchange™ Platform

May 20, 2013 | News Release

PatientsLikeMe names scientific advisory board for world's first open-participation research platform for patient-centered health outcome measures

What's Next Health: Daniel Kraft

May 15, 2013 | Story/Video

The What's Next Health series features leading thinkers and visionaries. Executive director of FutureMed, Daniel Kraft, MD, discusses approaches to "escape velocity" in health care.

RWJF Awards $1.9 Million Grant to PatientsLikeMe to Create World’s First Open Research Platform to Develop Patient-Centered Health Outcome Measurements

February 25, 2013 | News Release

PatientsLikeMe has been awarded a $1.9 million grant from RWJF to create the world's first open-participation research platform for the development of patient-centered health outcome measures.

PatientsLikeMe Project Pioneers Use of Outcomes Data That Are Meaningful To Patients

February 25, 2013 | Pioneering Ideas Blog Post

Jamie Heywood, co-founder of PatientsLikeMe, and Paul Tarini, senior program officer of the Pioneer Team at RWJF, share their views on creating an open-access platform to develop measures that matter to patients.

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