PatientsLikeMe
February 25, 2013 | Grantee
PatientsLikeMe is an established network for patients who want to monitor their health, improve their outcomes, and contribute to medical research and discovery.
Clinical Research
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PatientsLikeMe Calls For Researcher Participation in New Open Research Exchange™ Platform
May 20, 2013 | News Release
PatientsLikeMe names scientific advisory board for world's first open-participation research platform for patient-centered health outcome measures
RWJF Awards $1.9 Million Grant to PatientsLikeMe to Create World’s First Open Research Platform to Develop Patient-Centered Health Outcome Measurements
February 25, 2013 | News Release
PatientsLikeMe has been awarded a $1.9 million grant from RWJF to create the world's first open-participation research platform for the development of patient-centered health outcome measures.
PatientsLikeMe Project Pioneers Use of Outcomes Data That Are Meaningful To Patients
February 25, 2013 | Pioneering Ideas Blog Post
Jamie Heywood, co-founder of PatientsLikeMe, and Paul Tarini, senior program officer of the Pioneer Team at RWJF, share their views on creating an open-access platform to develop measures that matter to patients.
Clinical Research Needs Definition, Data and Funding, Panel Says
November 1, 2001 | Program Result Report
Three organizations convened the "National Clinical Research Summit," with the goal of establishing broad, national goals in clinical research and creating a process for monitoring progress toward meeting those goals.
What's Next Health: Daniel Kraft
May 15, 2013 | Story/Video
The What's Next Health series features leading thinkers and visionaries. Executive director of FutureMed, Daniel Kraft, MD, discusses approaches to "escape velocity" in health care.
Symptoms and Treatment Burden of Gastroesophageal Reflux Disease
October 1, 2004 | Journal Article
Gastroesophageal reflux disease (GERD), or heartburn, is a health condition approximately 25 million people confront on a daily basis. The current study examined the validity of a measure of quality of life for people suffering with GERD. The 31-ite ...