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End of Life & Palliative Care

Our persistent efforts have brought about a sea change in end-of-life care, but there is still a way to go. Learn more about our work in death and dying.

Landmark Work in the Field

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Transforming End-of-Life Care

When we first entered the field, the standard approach to the care of dying patients focused on aggressive, ineffective and often painful treatment, even as the unchangeable reality of death stared patients, loved ones and medical professionals squarely in the face. We joined and helped advance the movement that changed the way physicians deal with dying and death.

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Robert Wood Johnson Foundation Series on Health Policy

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Palliative Care: Past, Present, and Future

"Palliative care wins trust because it begins and ends with what patients and families say they want and need," says Diane E. Meier, M.D., one of the field's leaders, in this compelling essay. She examines the emergence of palliative care, and why care of the seriously ill is an important issue within the health and health care arena—and how the current health care system is unable to cope with it.

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Transferring Care from the Hospital to the Nursing Home

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Palliative Care in Long-Term Care

Transferring patients from hospital palliative care to nursing home palliative care requires careful planning and coordination between numerous parties, including family members and medical teams. In these “Notes from the Field,” academic and medical professionals discuss the transition from hospitals to nursing homes.

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Report on End-of-Life Care

Trends and Variations in End-of-Life Care

Chronically ill Medicare patients spent fewer days in the hospital and received more hospice care, but at the same time there was an increase in the intensity of care for patients who were hospitalized, according to a Dartmouth Atlas Project report on trends and variation in end-of-life care.

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Quick Facts From This Report

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  • About one-fourth of all Medicare spending goes to pay for the care of patients in their last year of life.
  • Chronically ill patients were significantly more likely to be treated by 10 or more doctors in the last six months of life in 2007 than they were in 2003.
31%

The percentage of hospitals providing palliative care

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Recent Work in the Field

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Getting the Best Care for Mom and Dad

An RWJF grantee finds the key to choosing the best hospital for older adults. Alicia Arbaje, MD, MPH, has produced new evidence on how to keep older adults out of the hospital, healthy and in their own homes.

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About Advance Directives

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Five Wishes

Learn more about advance directives and how to express care preferences at the end of life. Five Wishes is an initiative of Aging With Dignity, a nonprofit that seeks to safeguard the rights of the sick, aging or dying. The Foundation supported the introduction of Five Wishes in 1997.

Visit Five Wishes

End of Life and Palliative Care

Blog Post

Human Capital News Roundup: Combating compassion fatigue, the effects of poor sleep, living wills, and more.

Around the country, print, broadcast and online media outlets are covering the groundbreaking work of RWJF leaders, scholars, fellows, alumn...

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Program Result Report

Last Acts Program Assessment

In 1999 and 2000, Balch Associates assessed the RWJF Last Acts® campaign for improving end-of-life care so that RWJF and other Last Acts sta...

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Program Result Report

Pilot Program a Success, End-of-Life Training Extended to Entire VA System

Between 1998 and 2000, the U.S. Department of Veterans Affairs (VA) in Washington, worked to improve end-of-life and palliative care trainin...

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Program Result Report

Did Televised Assisted-Suicide Improve Media Coverage of Euthanasia?

Researchers at the University of Pennsylvania analyzed news coverage of a videotaped assisted suicide that was shown on the CBS news magazin...

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Program Result Report

Impact of Medicaid Just One Factor in Quality of End-of-Life Care in Nursing Homes

In 1999, Milan Basta, M.D., Ph.D., Potomac, Md., reviewed Medicaid nursing home reimbursement policies and their impact on palliative care. ...

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Program Result Report

If You're No Spring Chicken, Don't Be an Ostrich

The American Association of Retired Persons (now known as AARP), Washington, produced an eight-page pullout special section called "Start th...

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Program Result Report

Conference Explores What Physician-Assisted Suicide Could Mean to People with Disabilities

In 1997 and 1998, staff at Dartmouth College, Hanover, N.H., organized two conferences on physician-assisted suicide and what it means to pe...

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Program Result Report

National Telephone Survey Compared RWJF Goals with the Public's Interest on Key Issues

Audits and Surveys Worldwide (ASW), a New York-based international marketing research firm, measured public attitudes and perceptions on a s...

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Program Result Report

Massachusetts Raises Awareness of Hospice Services

Starting in 1997, the Hospice Federation of Massachusetts developed and disseminated a model for conducting a statewide public awareness cam...

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Program Result Report

Hospice Volunteer Survey Could Lead to Cuts in Programs

From 1996 to 1998, the University of Virginia Health Sciences Center, Charlottesville, Va., carried out Final Gifts, a national research stu...

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Program Result Report

Task Force Identifies Ways to Improve End-of-Life Care Provided by Managed Care Organizations

The purpose of this project was to encourage better terminal and palliative care for the growing number of Medicare, Medicaid and commercial...

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Program Result Report

Maryland Attorney General and Johns Hopkins Study Barriers to Effective End-of-Life Care

In June 1997, the Johns Hopkins University Bioethics Institute, Baltimore, and the Maryland attorney general's office formed a partnership t...

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View all End-of-life care (622)
RWJF Home → Topics → End Of Life
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