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End of Life & Palliative Care

Our persistent efforts have brought about a sea change in end-of-life care, but there is still a way to go. Learn more about our work in death and dying.

Landmark Work in the Field

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Transforming End-of-Life Care

When we first entered the field, the standard approach to the care of dying patients focused on aggressive, ineffective and often painful treatment, even as the unchangeable reality of death stared patients, loved ones and medical professionals squarely in the face. We joined and helped advance the movement that changed the way physicians deal with dying and death.

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Robert Wood Johnson Foundation Series on Health Policy

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Palliative Care: Past, Present, and Future

"Palliative care wins trust because it begins and ends with what patients and families say they want and need," says Diane E. Meier, M.D., one of the field's leaders, in this compelling essay. She examines the emergence of palliative care, and why care of the seriously ill is an important issue within the health and health care arena—and how the current health care system is unable to cope with it.

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Transferring Care from the Hospital to the Nursing Home

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Palliative Care in Long-Term Care

Transferring patients from hospital palliative care to nursing home palliative care requires careful planning and coordination between numerous parties, including family members and medical teams. In these “Notes from the Field,” academic and medical professionals discuss the transition from hospitals to nursing homes.

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Report on End-of-Life Care

Trends and Variations in End-of-Life Care

Chronically ill Medicare patients spent fewer days in the hospital and received more hospice care, but at the same time there was an increase in the intensity of care for patients who were hospitalized, according to a Dartmouth Atlas Project report on trends and variation in end-of-life care.

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Quick Facts From This Report

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  • About one-fourth of all Medicare spending goes to pay for the care of patients in their last year of life.
  • Chronically ill patients were significantly more likely to be treated by 10 or more doctors in the last six months of life in 2007 than they were in 2003.
31%

The percentage of hospitals providing palliative care

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Recent Work in the Field

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Getting the Best Care for Mom and Dad

An RWJF grantee finds the key to choosing the best hospital for older adults. Alicia Arbaje, MD, MPH, has produced new evidence on how to keep older adults out of the hospital, healthy and in their own homes.

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About Advance Directives

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Five Wishes

Learn more about advance directives and how to express care preferences at the end of life. Five Wishes is an initiative of Aging With Dignity, a nonprofit that seeks to safeguard the rights of the sick, aging or dying. The Foundation supported the introduction of Five Wishes in 1997.

Visit Five Wishes

End of Life and Palliative Care

Report

Quality of End-of-Life Cancer Care for Medicare Beneficiaries

Report shows that many challenges remain to improving the care of patients with serious, life-limiting illness.

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Program Result

National Cancer Pain Initiative Resource Center Supports State-Level Initiatives as They Implement Pain Management Practices

Faculty and staff at the University of Wisconsin School of Medicine and Public Health established the Resource Center, to support the growth...

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Evaluation

Evaluation of the Robert Wood Johnson Foundation's Body of Work in End-of-Life Care

The evaluation addresses questions about the Foundation’s end-of-life strategy improve care for individuals at the end of life. The focus of...

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Program Result

Care at the End of Life Still Not What It Could Be

Joan Teno of the Brown University School of Medicine, Providence, R.I., analyzed existing data, interviewed bereaved family members and cond...

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Journal Article

Discussions with Physicians about Hospice Among Patients with Metastatic Lung Cancer

Many terminally ill patients enroll in hospice only in the final days before death or not at all. Discussing hospice with a health care prov...

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Program Result

Project in Alaska City Struggles with Faith in Action Name

Sitka is a coastal island city accessible only by boat or air. A number of the 8,800 residents of this isolated community do not have family...

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Book

Palliative Care

Palliative Care:Transforming the Care of Serious Illness is the first book to provide a comprehensive understanding of the new field that is...

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Program Result

Nurse Educators Receive Training in End-of-Life Care

The American Association of Colleges of Nursing conducted 15 training conferences designed to enable nursing school faculty to integrate ins...

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Program Result

Online Courses for Nurse Educators and Nurses on End-of-Life Care Across the Life Span

Two schools of nursing developed electronic toolkits: one for nurse educators and one for self-study by practicing nurses.

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Program Result

Medical Students at Six Schools Learn how to Provide Palliative Care - And Their Teachers Learn How to Teach It

From November 2006 to May 2009, investigators at the Medical College of Wisconsin helped six medical schools develop educational programs fo...

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Program Result

Promoting Excellence in End-of-Life Care

Promoting Excellence in End-of-Life Care was a program to identify, promote and institutionalize care practices that allow seriously ill peo...

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Journal Article

Palliative Care in the Treatment of Advanced Heart Failure

This review of literature is a primer in palliative care for end-stage heart disease, a condition with severe physical and emotional symptom...

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View all End-of-life care (632)
RWJF Home → Topics → End Of Life
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