Website Aims to Guide Cancer Survivors in Finding Comfort Care

Empowering cancer survivors through information and programs about palliative care

Starting in 2002, project staff at the National Coalition for Cancer Survivorship, Silver Spring, Md., developed a section of the coalition's website to provide information on palliative care (or comfort care) for people living with cancer, their families and their caregivers and organized a town meeting with recommendations for the field.

The project was part of the Robert Wood Johnson Foundation's (RWJF) national program Targeted End-of-Life Projects Initiative.

Key Results

  • The project accomplished the following:

    • Created and launched Essential Care: Your Comprehensive Guide to Living with Cancer, a section of the coalition's existing website.
    • Planned and hosted a town meeting on April 25, 2003, in Cleveland on palliative care. Living and Dying Well with Cancer: A Community Conversation drew a live audience of 140 people, with an additional 100 participating via webcast.
    • The meeting, held on the campus of Case Western Reserve University, also highlighted Project Safe Conduct as a model of exemplary care for those with cancer. The meeting offered the following recommendations:
      • Formalize better reimbursement from health insurance carriers for palliative cancer care.
      • Curative cancer care therapy and palliative care should not be mutually exclusive in health care settings.
      • Include palliative care as a component of a comprehensive cancer care center.