From 1997 to 1998, researchers at the Oregon Pacific Research Institute evaluated and enhanced the ongoing support patients need to manage a broad spectrum of chronic diseases, which affect more than 100 million Americans.
Specifically, researchers developed a survey that assesses a patient's self-management of illness on several levels, along with materials and action steps to help patients manage their illnesses.
- Developed and validated the Chronic Illness Resources Survey, which assesses a patient's illness self-management activities on six psychosocial and environmental factors:
- Personal behaviors.
- Family and friends.
- The health care system.
- The worksite.
- The community.
- Media, policy, and culture.
- Developed and piloted personalized feedback materials and recommended action steps individualized for patients to help them increase community resources and support for illness self-management in ways consistent with their values.
The Robert Wood Johnson Foundation (RWJF) supported this project through a grant of $102,016.