From August 1999 through July 2002, J. Randall Curtis, MD, MPH, and his colleagues at the University of Washington School of Medicine, Seattle, developed and validated the Quality of Dying and Death tool, a questionnaire designed to measure the quality of the dying experience.
The project was part of the Robert Wood Johnson Foundation's (RWJF) national program Targeted End-of-Life Projects Initiative.
The principal investigator reported the following findings:
The investigators administered the Quality of Dying and Death questionnaire to more 200 family members of individuals who died in Missoula County, Mont., in 1996 and 1997. During the study, which ran from 1997 through 2000, family members completed a number of other questionnaires, and the investigators examined medical records for 90 percent of the deceased.
The principal investigator reported the following findings in an article in the Journal of Pain and Symptom Management: