Children with special health care needs are dependent on uninterrupted medical care for their health and well-being. Almost 13 percent of children in the U.S. are classified as such and they account for a disproportionate share of health care expenditure. Due to improved medical treatments, a vast number of these children now survive into adulthood. This study presents findings on medical transition planning for adolescents with special health care needs moving into adulthood, from the perspective of their guardians or parents. Data were analyzed from the 2001 National Survey of Children with Special Health Care Needs.
The key findings of the study were:
The results suggest that the overall rates of transition planning are relatively low. More efforts are needed to help children with special health care needs receive the services that they require.