The Institute of Medicine (IOM), Washington commenced a study of care for children who die and their families in 2000, and issued a report in July 2002.
The IOM appointed a committee of experts to oversee the study. The committee held five meetings, including three public sessions. Committee members heard testimony from:
The project was part of the Robert Wood Johnson Foundation's (RWJF) national program Targeted End-of-Life Projects Initiative.
The IOM's report, When Children Die: Improving Palliative and End-of-Life Care for Children and Their Families, included the following findings:
The report presented the recommendations of the study committee, including: