Planning the expansion of the Society for Participatory Medicine to a strategic organization active in the policy arena

This grant supports the first in-person strategic-planning retreat of the Board of Directors of the Society for Participatory Medicine (SPM). In 1997, several health care leaders coined the term "e-patient" to describe individuals who are equipped, enabled, and empowered to engage in health and health care decisions. In 2009, several of those leaders formed SPM as a 501(c)(3) nonprofit corporation. SPM brings together e-patients, caregivers, and health care providers to address a spectrum of health care challenges, such as improving quality of care, advocating shared decision-making, improving patients' experience of care, and promoting the patient-centric use of information technology. SPM bases its activities on the importance of a dynamic and equitable relationship between e-patients and health professionals. SPM occupies a unique niche in patient-engagement efforts as an organization whose board, membership, and activities reflect that dynamic provider and patient partnership. SPM is currently re-evaluating its role at a time when a major change is unfolding that will impact all patients, such as implementation of the Affordable Care Act, adoption and use of health information technology, and rapid development of the science and economics behind patient engagement. The retreat, to be held in Washington, will include a professional nonprofit facilitator. The agenda for the two-day retreat will include an analysis of SPM's current activities and development of a strategic plan. SPM's goal for this meeting is to develop a detailed, strategic road map, complete the road map within six months of the retreat, and then use it to guide SPM activities over the next several years.

Grant Details

Amount Awarded $25,000.00

Awarded on: 6/8/2013

Time frame: 7/1/2013 - 6/30/2014

Grant Number: 71073


Society for Participatory Medicine, Inc.

P.O. Box 1183
Newburyport, 01950-6183


Joshua J. Seidman
Project Director