Recording observations of daily living to improve the care of patients with Crohn's disease

The Foundation's program, Project HealthDesign: Rethinking the Power and Potential of Personal Health Records, was designed to expand a vision of personal health records and encourage the market to develop products that meet the diverse needs of patients. The University of California, Berkeley, in collaboration with the Healthy Communities Foundation and the University of California, San Francisco, will lead a Project HealthDesign grant to help patients who suffer from Crohn's disease to create visual narratives of their condition. These visual narratives are designed to provide patients with feedback about how they feel and to be shared during their clinical appointments. They include patients' observations of daily living (ODLs) related to the co-occurring chronic conditions of pain, anemia-related fatigue and GI symptoms (such as diarrhea, constipation, abdominal distention, bleeding, appetite, nausea and vomiting), as well as more complex social and emotional observations based on patient interviews and questionnaires. Additional information is captured via wireless connections on weight and from the Cypak report card device for capturing gastrointestinal bathroom symptoms. The project's technical approach uses a smartphone mobile device and is centered around a patient-friendly, game-like "heads up display," comprising simple, familiar interface elements that emulate aspects of the Facebook mini-feed, Twitter style micro-blogging and the "news story as data point on a trend line" interface of Google Finance. The project will use the Common Platform created during the first phase of Project HealthDesign to share data collected on various platforms.

Grant Details

Amount Awarded $480,000.00

Awarded on: 4/13/2010

Time frame: 3/15/2010 - 6/30/2012

Grant Number: 67466


University of California, Berkeley

200 California Hall, Suite 1500
Berkeley, 94720-1500


Linda Neuhauser
Project Director