Creating a patient registry to facilitate data sharing and encourage patient-centered approaches to improving health and lowering costs

This funding supports development of a proof-of-concept prototype for a new type of patient registry based on aggregated interactions between doctor and patient. Countless one-to-one encounters characterize interactions between doctor and patient. Aggregated, these many one-to-one sessions could become many-to-many interactions, with immense implications. This new type of registry will be for patients and will consist of aggregated, de-identified care information about groups of similar patients. Patients with similar conditions and characteristics could then learn about and compare their care with that of many others in the registry. The project calls this registry a "super registry," named Patient-Centered Medical Zone (Zone). The project's primary hypothesis is that patients who are part of this network registry, the Zone, will be better informed and more engaged in their health care. The project envisions that the Zone could ultimately change the conventional model for medical advice from a one-to-one interaction to a many-to-many network. The prototype Zone will take that data from the clinical-data warehouse at the University of Cincinnati (University) Center for Health Informatics and compare similar patient cohorts, analyze them by numerous parameters and then present comparative treatment plans, therapeutics and other clinical pathways to each participating Zone patient. A project deliverable will be an operational Zone subsystem that will allow the project to demonstrate the Zone analytics in practice. The leads will also enroll, coach and survey a small sample set of patients to measure the efficacy of the Zone. Another deliverable will be a public-use dataset for inclusion in the Robert Wood Johnson Foundation's Health and Medical Care Archive.

Grant Details

Amount Awarded $160,650.00

Awarded on: 12/10/2012

Time frame: 12/15/2012 - 12/14/2013

Grant Number: 70228