Recording observations of daily living to improve the care of low-birthweight infants

The Foundation's program, Project HealthDesign: Rethinking the Power and Potential of Personal Health Records, was designed to expand a vision of personal health records and encourage the market to develop products that meet the diverse needs of patients. The University of California, Irvine, project teams will design, develop and deploy a mobile solution for collecting information from pre-term low birth weight infants and their home caregivers and share it with their health care providers to improve care. Caregivers will record Observations of Daily (ODLs) such as the baby's temperament, exercise, feeding and sleeping schedules and the caregiver's stress and attitude into an easy-to-use mobile device called FitBaby. There, it will be stored along with data such as weight, movement and sleep activity collected from the infant through cameras and sensors. The FitBaby system uses the combined information to provide visualizations of the data and send feedback, prompts and alerts to caregivers and providers. The information will be stored on the third party platform, Health Vault. The resulting solution will alert clinicians to early signs of health problems with the goal of improving the long-term health of these children. The project is unique both in its goals of incorporation of patient-generated information into a clinical setting but also because it collects information about the caregiver as well. Project deliverables include a user centered project design created by engaging caregivers and clinicians in the design process, a prototype of the FitBaby device and system software, testing of the device with approximately 40 infants in a 12-month period, comparative analysis of health outcomes during the period, and a final report detailing the experience of incorporating patient and caregiver-generated information into clinical practice, using Health 2.0 technology.

Grant Details

Amount Awarded $480,000.00

Awarded on: 11/24/2009

Time frame: 12/1/2009 - 5/31/2012

Grant Number: 67163


University of California, Irvine

346 Arroyo Drive
Irvine, CA, 92617-4346


Karen Cheng
Project Director


Gillian R. Hayes
Project Director


Most Requested