Archive for: November 2013

Engaging Patients in Research

Dec 3, 2013, 8:00 AM, Posted by Paul Tarini

What happens when you engage patients in research? That’s a question RWJF is exploring with grants to Sage Bionetworks and PatientsLikeMe to build online, open-source platforms that give patients the opportunity to contribute to and collaborate on research.

Sage Bionetworks’ BRIDGE platform will allow patients to share and track their health data and collaborate on research into diseases and health problems that matter most to them. Three research projects will be piloted on BRIDGE in the coming year, focusing on diabetes, Fanconi anemia and sleeping disorders.

PatientsLikeMe’s Open Research Exchange (ORE) will give researchers and patients a space to work together to develop health outcome measures that better reflect outcomes that are meaningful to patients. After several months building the ORE, PatientsLikeMe is now in testing mode, putting the platform through its paces. But it’s not just an academic exercise. PatientsLikeMe has recruited four researchers to pilot the ORE. These researchers will be providing feedback on the site while working with patients in the PatientsLikeMe network to develop and test an initial set of health outcome measures.

Sage Bionetwork’s Stephen Friend discusses collaboration between patients and researchers

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What’s Next Health: The Motivation Bias

Nov 27, 2013, 7:00 AM, Posted by Pioneer Blog Team

Debra Joy Pérez, vice president for Knowledge Support at the Annie E. Casey Foundation Debra Joy Pérez, vice president for Knowledge Support at the Annie E. Casey Foundation

Each month, What’s Next Health talks with leading thinkers about the future of health and health care. Recently, we talked with BJ Fogg, director of the Stanford Persuasive Tech Lab, to discuss motivation versus ability, and to better understand which matters more in creating long-term change. In this post, Debra Joy Pérez, former assistant vice president for Research and Evaluation at the Robert Wood Johnson Foundation, who is now working with the Annie E. Casey Foundation, shares her impressions of BJ’s model and how it might impact the work of organizations like ours.

By Debra Joy Pérez

There is something magically simple in how BJ Fogg’s Behavioral Model addresses behavior change. When just three elements coincide—motivation, ability and a trigger—behavior change happens.

From my own experience, I can tell you that BJ’s model can work in developing new and healthy habits. I heard from BJ that immediately after he pees, he does push-ups. He is attaching a new habit he wants to create to an old habit he already has. Every time he relieves himself, he is triggered to perform a simple action that has him looking and feeling healthier. Like BJ, I wanted to improve my health (motivation)—specifically, I wanted to drink more water. My trigger was green tea. I drink a lot of it, so after each cup, I remember to fill the empty cup with water. I’m pleasantly surprised when I see that I’m nearing half a gallon by the middle of the day. It's working.

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Spurring Open Source Health Innovation

Nov 21, 2013, 3:00 PM, Posted by Lori Melichar

Lori Melichar, director Lori Melichar, director

I recently learned to Code… in a Day.

Why, you might ask, would a labor economist at a health foundation want to acquire programming skills that didn’t relate to statistical analysis? Well, for one thing, I was curious—I wanted to understand the magic that turns letters and numbers into apps with the power to make our lives easier, and our health better. And as a program officer tasked with funding transformative innovations, I wanted to gain perspective on the world of apps, mHealth and the culture of innovation associated with the Silicon Valley tech scene.

To be clear, here at Pioneer, we’re interested in innovations of all shapes in sizes—not just those that are technical in nature. We’ll take a low-tech approach that truly disrupts business-as-usual over a high-tech incremental improvement any day of the week. That said, considering the volume of proposals we receive that involve creating an app or online platform of some kind, it seemed like boosting my literacy in this area couldn’t hurt. (Though I’m fortunate to have colleagues like Steve Downs, the Foundation’s Chief Technology and Information Officer, to fill in gaps in my technical expertise.)

So I learned to code in a day, and I left the class with an app of my own creation. Even more valuable, I learned about developers’ habits and culture…“the developers’ code,” if you will.  And I saw a lot that I’d like to emulate.

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Could Good Health Be Contagious?

Nov 18, 2013, 6:00 PM, Posted by Pioneer Blog Team

teamup4health group exercise

A study released this week at the American Heart Association’s Scientific Sessions provides early evidence indicating that social networks can be leveraged to spread good health. The study, which is the first long-term randomized trial of its kind in the U.S., recruited friends and families in rural Kentucky into "microclinic" social network clusters. Together, the microclinic groups attended weekly social events, such as physical activity sessions and nutrition classes.  Collectively called Team Up 4 Health, these activities were supported with gifts from Humana, a health care company focused on wellness, as well as funding from the Mulago Foundation and the Goldsmith Foundation. Microclinic members lost more weight and more inches from their waistlines than those who received standard individual care. Microclinic participants sustained these results over time, lasting beyond the 10-month program period to even six months later.

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Dr. Bruce McCarthy of Columbia St. Mary’s on Adopting OpenNotes

Nov 4, 2013, 8:00 AM, Posted by Pioneer Blog Team

Dr. Bruce McCarthy, Columbia St. Mary’s Health System President, Physician Division Dr. Bruce McCarthy, Columbia St. Mary’s Health System President, Physician Division

On Nov. 1, Columbia St. Mary’s Health System in Milwaukee became the first hospital in Wisconsin to implement OpenNotes. Beginning this month, some 1,100 multi-specialty doctors, nurse practitioners, and others who write visit notes will be sharing them with more than 300,000 patients via a secure online portal. Columbia St. Mary’s is part of Ascension Health, the largest nonprofit Catholic health system in the country. This month, it also becomes the first hospital system to share hospital discharge summaries with patients. Bruce McCarthy, MD, President, Physician Division, an internist who oversees the system’s medical group, spearheaded the rollout of OpenNotes here. An innovator who "puts patients first," Dr. McCarthy talked to Pioneer about why it’s time to make the idea of sharing medical notes a routine practice.

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