Archive for: June 2012

Project HealthDesign and Patient-generated Data

Jun 27, 2012, 1:38 PM, Posted by Libby Dowdall

Project HealthDesign National Program Director Patricia Flatley Brennan, R.N., Ph.D., shares how Project HealthDesign views patient-generated data.

Project HealthDesign is a national program of the Robert Wood Johnson Foundation's Pioneer Portfolio. This post originally appeared on the Project HealthDesign blog on June 26, 2012.

Throughout Project HealthDesign’s history, our grantee teams have worked closely with patients in order to explore the potential of personal health records (PHRs) and personal health data. As our first nine teams worked on their projects, they listened closely to patients and began hearing patients describe their health in idiosyncratic ways. Their work led to the recognition of observations of daily living (ODLs) — information about an individual’s life that is both patient-defined and patient-generated.

Project HealthDesign's five most recent grantee teams have carried this vision forward by designing five different technical systems that allow patients to track their ODL data. In these projects, patient participants have tracked a variety of ODLs, from daily activity and stress levels to socializing and moods.

But ODLs are just one type of patient-generated data. Other types include traditional patient-reported information about signs and symptoms (e.g., blood pressure, blood glucose), sensor data, patient preference data, and patient-reported quality assessment data.

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#GFH12 Update: Health Games Research Database Adds Powerful Online Search Features

Jun 13, 2012, 11:15 PM, Posted by Debra Lieberman

Each year at the Games for Health Conference, I am excited to see how the field continues to grow. An important way our Robert Wood Johnson Foundation national program, Health Games Research, helps move the field forward is to ensure that our colleagues – game developers, health care providers, researchers, funding agencies, investors, policy-makers, parents, educators, and more – have access to the information and resources they need.

We are pleased to announce at this year’s conference that our Health Games Research online searchable database has been updated with new search and save features that make it easier to use and a more powerful search tool. The Health Games Research Database is the largest publicly available repository of information about health games, with extensive information about games, publications, resources, organizations, and events.

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Project HealthDesign Calls for Patient-Generated Data in Meaningful Use Stage 3 Criteria

Jun 13, 2012, 7:30 AM, Posted by Pioneer Blog Team

Last Friday, Patricia Flatley Brennan, RN, PhD, Project HealthDesign’s national program director, and Nikolai Kirienko, co-project director for Project HealthDesign’s Crohnology.MD team, testified at a hearing on the incorporation of patient-generated data into Meaningful Use Stage 3 criteria. The hearing was organized by the Meaningful Use Workgroup of the Federal Health IT Policy Committee.

Meaningful Use Stage 3, scheduled to roll out in 2016, will set requirements for health care providers seeking incentive payments for the adoption of electronic health records. Brennan’s testimony drew upon the experiences of all 14 Project HealthDesign teams working with patients and clinicians to collect and track patient-generated data. Previously, Brennan provided testimony to set requirements for the first stage of Meaningful Use.

Kirienko’s testimony drew upon the experiences of Project HealthDesign’s Chronology.MD team; he also spoke as an advocate for patient engagement in health and health care through collaboration with clinicians around patient-generated data. His testimony focused on the need for patient access to electronic health records and the need for standards for dynamic patient engagement on mobile devices.

Follow @prjhealthdesign on Twitter.

Taking Note

Jun 12, 2012, 2:00 PM, Posted by Pioneer Blog Team

Suzanne Mintz, President and CEO of the National Family Caregivers Association

Nearly one third of adults in the U.S. provide care for a chronically ill, disabled or aged family member or friend during any given year, spending an average of 20 hours per week providing care for their loved one. Many are responsible for helping coordinate their loved one’s medical care—keeping track of doctor’s appointments, reminding care recipients to take medications and monitoring their overall health.

Asking patients to share doctors’ notes with their family caregivers can help caregivers be more effective in this role. It can also help both patient and caregiver feel more in control and allow them to more fully engage in health care decisions. Yet few patients act on their right to access and share their doctors’ notes, lab test results and other information contained in medical records.

Reminding women—who so often play the role of family caregiver and drive health care decisions in families—that this resource is available and encouraging them to ask doctors for copies of their notes is critical. That’s why I was so pleased to read about OpenNotes in the May issue of the magazine Redbook.

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Gaming the Field

Jun 12, 2012, 8:30 AM, Posted by Ben Sawyer

Ben Sawyer Ben Sawyer

Today starts the eighth annual Games for Health Conference - a big week for those in the health games field. For three days (June 12-14) game designers and developers, researchers, medical professionals, educators, entrepreneurs, and policy-makers will come together in Boston, Mass., to discuss and share information about the impact games and game technologies can have on health and health care.

Founded in 2004 with support from the Robert Wood Johnson Foundation’s Pioneer Portfolio, the Games for Health Project exists to make large breakthroughs. Initially that just meant increasing belief in the notion that games could result in healthy outcomes. We tried to build a greater sense that games could improve health, and then integrate others into the fold, resulting in the emergence of new work in this field. With this in mind, I thought I’d take a moment to look back on how far we’ve come in the past few years and reflect on where we need to go.

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