Now Viewing: Health records/electronic health records

Big News in Big Data: NIH Launches Largest and Most Diverse Genetics Database Ever Created

Feb 26, 2014, 7:21 PM, Posted by Nancy Barrand

biobank

Eighteen years ago this month, Big Data had a cultural coming out party when IBM's Deep Blue defeated international chess champion Gary Kasparov in a game. Gary Kasparov was a chess genius. But Deep Blue could mine the records of 700,000 grandmaster chess games and evaluate 200 million positions per second. The famously nimble Kasparov ultimately could not match the brute computing force of Deep Blue. 

This week we mark another historic milestone in Big Data history. This time, there is more at stake than bragging rights from a chess competition. 

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Dr. Bruce McCarthy of Columbia St. Mary’s on Adopting OpenNotes

Nov 4, 2013, 8:00 AM, Posted by Pioneer Blog Team

bruce mccarthy Dr. Bruce McCarthy, Columbia St. Mary’s Health System President, Physician Division

On Nov. 1, Columbia St. Mary’s Health System in Milwaukee became the first hospital in Wisconsin to implement OpenNotes. Beginning this month, some 1,100 multi-specialty doctors, nurse practitioners, and others who write visit notes will be sharing them with more than 300,000 patients via a secure online portal. Columbia St. Mary’s is part of Ascension Health, the largest nonprofit Catholic health system in the country. This month, it also becomes the first hospital system to share hospital discharge summaries with patients. Bruce McCarthy, MD, President, Physician Division, an internist who oversees the system’s medical group, spearheaded the rollout of OpenNotes here. An innovator who "puts patients first," Dr. McCarthy talked to Pioneer about why it’s time to make the idea of sharing medical notes a routine practice.

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Introducing the Pitch Day Finalists: The Human Genome + the Human Exposome = Your Health

Oct 7, 2013, 8:00 AM, Posted by Pioneer Blog Team

Elise Miller Elise Miller, director of the Collaborative on Health and the Environment

What if we could map the environmental exposures that affected someone’s health, starting from the moment of conception? And what if we could use that information to radically transform our ability to prevent disease? That’s the highly simplified version of the idea that a team helmed by Elise Miller. She was invited to present her idea live and in person at the first-ever Pioneer Pitch Day, along with seven other finalists. Read Miller’s 1,000-character proposal below, and join the discussion on Twitter at #pioneerpitch.

Elise Miller is the director of the Collaborative on Health and the Environment, which you can connect with on Twitter at @che_for_science and on Facebook. The other members of her pitch team include Frederica Perera, PhD, and Maida Galvez, MD, MPH.

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NYC Macroscope Puts Data at the Fingertips of City Officials

Aug 22, 2013, 8:00 AM, Posted by Brian C. Quinn

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New York City is helping officials better understand and respond to public health needs by putting data at their fingertips. The NYC Macroscope uses information captured routinely in the doctor’s office to paint a picture of health for the entire city—quickly, accurately and inexpensively. This powerful use of electronic health records has the potential to transform public health decision-making across the country. Learn more in this NewPublicHealth interview with the NYC Macroscope’s Carolyn Greene, MD. — Brian Quinn

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Building Big Data, One Swab at a Time

Mar 14, 2013, 2:00 PM, Posted by Nancy Barrand

Watch PBS NewsHour's feature, "Researchers Aim to Unlock Genetic Data Goldmine for Vital Medical Information," on the Kaiser biobank to learn more about how Catherine Schaefer, Neil Risch and 200,000 Kaiser members are accelerating the pace of medical research and bringing the future potential of genomics into the here and now.

When the Robert Wood Johnson Foundation launched the Pioneer Portfolio, my colleagues and I asked ourselves what fields might produce the greatest potential game-changers for health and health care. Genomics was at the top of the list. The human genome had been mapped and fantastic discoveries had begun to blossom, but a true era of personalized medicine still seemed too far off.

So we set out to do what Pioneer does best. We explored and learned. We networked.  We asked a lot of questions.  And we began to hunt down ideas.

On March 12, PBS NewsHour did a feature story on one of the big ideas that came out of that process: the world’s largest, deepest, and most diverse “biobank.” It presented a good opportunity to share the backstory. 

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