Now Viewing: Patients

A Toolkit for Implementing OpenNotes

Mar 10, 2014, 10:00 AM, Posted by Steve Downs

Open Notes_20120530_00726

In writing about OpenNotes last summer, I argued that the practice of sharing clinicians’ notes with patients had moved beyond the question of whether it was a good idea (the landmark study published in Annals of Internal Medicine was pretty clear on that) to questions of how best to implement it.  As more organizations adopt the practice, it’s clear that we’re now in a phase of implementation, and experimentation with different approaches and learning.  Tom Delbanco, MD, one of the project leads, often compares open notes to a drug -- it does have some side effects and some contraindications for some people and some circumstances -- and we all need to understand those nuances.

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What’s Next Health: Flipping the Visit

Jul 18, 2013, 3:00 PM, Posted by Pioneer Blog Team

Rishi Desai Rishi Desai, medical fellow at the Khan Academy

Each month, What’s Next Health talks with leading thinkers about the future of health and health care. Recently, we talked with Sal Khan, founder of the Khan Academy, who shared his vision for “reimagining education” and what that means for health and health care. Khan Academy medical fellow and Pioneer grantee, Rishi Desai, MD, MPH, shares thoughts on how Khan Academy's approach to learning can help transform the patient experience.

By Rishi Desai

In my pediatric clinic, I generally get 20 minutes with each patient, which is long by many standards. I spend most of that time asking questions and sharing a treatment plan, leaving only two or three minutes to really talk with people about my assessment and address their thoughts and concerns. As a result, patients (in my case, a child and their accompanying adult) too often go away unconvinced or confused about what to do next.

But what if we flipped the visit? What if I could spend time quietly listening to a patient who comes to me already informed and prepared to talk about her child's health and any issues she might be facing? What if the doctor/patient visit allowed us to build better trust—to work as partners instead of me “giving a lecture”?

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Making Big Data a Force for Good

Jul 5, 2013, 8:00 AM, Posted by Pioneer Blog Team

Pioneering the Use of Personal Health Data

In case you missed it, the New York Times recently devoted a section to the business and culture of big data. “Virtually every field, from science to sports to public health, is being transformed by data-driven discovery and decision-making,” observed writer Steve Lohr. The coverage included several insights into the intersections of data and health. We were especially interested to read about data scientist Jeff Hammerbacher’s new role at the Mount Sinai School of Medicine (he used to run the data-mining team at Facebook), where he’s “exploring genetic and other medical data in search of breakthroughs in disease modeling and treatment.” Also of interest: how CVS is using data to “stage-manage paths to the prescription counter” (apparently, those with chronic health problems are their best customers), and this chart of devices that track health data.

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The Body-Data Craze, the Hype Cycle and Why It Matters

Jul 3, 2013, 11:15 AM, Posted by Steve Downs

Visualizations of health data at Calit2 Health data visualization at Calit2. Photo courtesy of Calit2

On my way out to visit the Calit2 team that is running the Health Data Exploration project (sponsored by the Robert Wood Johnson Foundation’s Pioneer Portfolio), I read Alissa Quart's excellent piece in Newsweek about the Quantified Self (QS) movement and health. The article covers many of the possible benefits as well as the downsides of self-tracking.

As Quart acknowledges, she also focuses quite a bit on the edge cases, the extreme QSers, painting a picture that can seem a little ridiculous. It’s inevitable; whenever a new technology emerges, a subset of early adopters takes it to the extreme, making the technology and its applications easy for us to mock (see "glasshole").

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Video: Larry Smarr on the Health Data Exploration Project

Jun 10, 2013, 8:00 AM, Posted by Lori Melichar, Steve Downs

As we set forth on the Health Data Exploration project, we're being guided by a wonderful set of advisors. Here's a quick video post from one of them, Larry Smarr, the director of Calit2.  Larry's a pioneer who's exploring the frontiers of quantified self, as you can see from the extraordinary talk he gave at TEDMED earlier this year.