Now Viewing: E-health

A Conversation with the Health Data Exploration Project

Mar 31, 2014, 1:12 PM, Posted by Pioneer Blog Team

Person tracking their health data on a mobile device.

RWJF’s Lori Melichar and Steve Downs sat down with grantees Kevin Patrick and Jerry Sheehan who lead the Health Data Exploration project to discuss early insights from their work, shared in the recent report Personal Data for the Public Good: New Opportunities to Enrich Understanding of Individual and Population Health.”

Patrick and Sheehan are working on a team that is exploring the use of personal health data in research and how to bridge the “worlds” of individuals who track data about their own personal health, companies that develop tracking apps and devices and typically hold these data, and health researchers.

Here are highlights from their conversation:

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Introducing What’s Next Health: Conversations with Pioneers

May 15, 2013, 2:15 PM, Posted by Brian C. Quinn

Brian Quinn Brian Quinn, assistant vice president, Research and Evaluation

One of the best things about our jobs at Pioneer is that we get to have conversations with interesting people doing interesting things. As we network with these visionary thinkers, we want to share some of the great stuff we’re learning and hearing with you—to bring value to the work you’re doing. That’s why I’m pleased to introduce What's Next Health: Conversations with Pioneers, a new series here at RWJF that explores the future of health and health care, asks the big questions, and looks to the cutting-edge for solutions.

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PatientsLikeMe Project Pioneers Use of Outcomes Data That Are Meaningful To Patients

Feb 25, 2013, 12:33 PM, Posted by Pioneer Blog Team

Jamie Heywood Jamie Heywood
Paul Tarini Paul Tarini

RWJF has awarded PatientsLikeMe a $1.9 million grant to create the world’s first open-participation research platform to develop patient-centered health outcomes. The new platform will be linked with the PatientsLikeMe network to help researchers develop health outcome measures that better reflect patients’ experiences with a disease, and assess health and quality of life in ways that matter to patients.

Jamie Heywood, co-founder of PatientsLikeMe, and Paul Tarini, senior program officer of the Pioneer Team at RWJF, share their views on why creating an open-access platform to develop measures that matter to patients could advance meaningful treatments that improve health and advance research.

Why is this a pioneering project?  What makes it novel? 

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A Pioneer Auld Lang Syne

Dec 27, 2012, 11:45 AM, Posted by Brian C. Quinn

Brian Quinn Brian Quinn, assistant vice president, Research and Evaluation

As New Year’s Eve approaches, let’s take a look at a few of Pioneering Ideas’ greatest hits of 2012 one last time.

We rang in 2012 with a post about an idea Steve Downs called simple and dangerous—OpenNotes, an experiment that has enabled patients to read their doctors’ medical notes. We believe OpenNotes has the potential to transform the way patients engage with health care professionals—and take charge of their health.

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