Earlier this year, the Department of Veterans Affairs (VA) embraced OpenNotes, enabling more than 1 million veterans who currently have access to the VA personal health record to view or download their own medical notes along with their health record information via the My HealtheVet Blue Button. In a recently published study in the Journal of Medical Internet Research (JMIR), the VA's Susan Woods, MD, MPH, a longtime champion of open access and transparency, examined patients’ views and experiences with reading their health records, including clinical notes. The study is the first qualitative look at VA patients’ experiences viewing electronic records that included clinical notes and lab test results. Woods and her colleagues showed that viewing records and notes appeared to empower patients and increase their involvement in their own care but Woods says new communication skills will be needed to optimize the user experience.

In a recent interview, Woods discussed the power of open medical notes for patients and clinicians.   

In December, we asked our readers to tell us about the health care problems they felt were most in need of innovation—the tough problems, the crucial ones, maybe even those they’d seen firsthand. The number of comments we received was encouraging. It has also challenged our thinking, and generated a great deal of discussion on our team.

One thing is certain: The conversation that ensued from that post confirmed that our team needs to do more listening—listening to patients, caregivers, health care professionals, innovators, thought leaders—the list goes on and on.

We saw some common themes in the problems you shared. A few of them are reflected in areas in which the Robert Wood Johnson Foundation is already working. Clearly there are problems that, despite the intensive efforts of many really smart people, resist conventional solutions. Other themes showed us how important it is to always be examining what we’re doing from perspectives other than our own. 

So where do we go from here?  

In the Pioneer Portfolio, we’re all about ideas—big ones and little ones—the ones that will help solve some of the toughest problems in health and health care. We have clearly articulated our strategy for investing in innovations and innovators who have the potential to transform areas such as the health care delivery system, the patient-provider relationship, and the education of health care professionals. That strategy has yielded some significant breakthroughs, and the hope for much more to come. 

But we’re still missing a big piece of the puzzle. Why? Because right now, we only hear from the folks who have solutions to offer. That approach, by its very nature, limits the number of problems we know about. Those of us who work on the Pioneer team only see health care from the proverbial 30,000-foot vantage point. We are not on the front lines, so we don’t see firsthand the issues health care providers, patients, and families struggle with every single day.

Last month’s 12gurus: Health conference brought “resources and innovation to the forefront” by convening the world’s most accomplished leaders in health care and medicine to share new ideas that can improve the health care system. The conference focused on how to enable innovation through research, data-sharing, and mobile technology to pave the way for future breakthroughs in health care.

Three former and current Pioneer grantees attended the invitation-only conference in New York City and gave 18-minute-or-less “TED.com-style” talks:

• Scott Johnson, president and founder of the Myelin Repair Foundation, presented the session, “Breaking from the Past to Breakthrough to Cures-Accelerated Collaboration Model.” Learn more about Scott’s recent honor as the recipient of the prestigious Gordon and Llura Gund Leadership Award from Research!America.

• Jason Hwang, executive director of health care at Innosight Institute, presented the session, “Preparing for Impending Disruptive Changes: The Innovators Prescription.”  Read more about Jason’s Pioneer-funded research, "Disruptive Innovation in Integrated Care Delivery Systems."

• Lisa Schwartz and Steve Woloshin, of the Dartmouth Institute for Health Policy & Clinical Practice, presented the session, “Ingredients of Simplicity: How to present data to patients in a way they’ll understand.” Learn more about their work creating Drug Facts Boxes and read Al Shar’s perspective on their research.  

HealthLeaders Media identified 20 individuals to tell their stories of how they are changing health care for the better in its annual HealthLeaders 20 issue. Two grantees of the Pioneer Portfolio are included in this prestigious honor.

Clayton Christensen is often referred to as the father of disruptive innovation, the concept that new technologies have the potential to turn an industry upside down—but they may be difficult for established organizations to adopt. In 2011, Christensen and his team at Innosight Institute published a Pioneer-funded case study series on disruptive innovations within integrated health systems. In the summary report, researchers investigated how the seven integrated health systems think, act and innovate differently.

Nicholas A. Christakis is a well-established name in the science of human connectivity and social networks. In 2011, Christakis’ innovative Pioneer-funded research looked into how humans interact and coordinate in response to the behavior of one’s social partners in an article published in Science and in this profile.

We’re proud to call these innovating movers and shakers part of the Pioneer family. They, like all of us, are working to make a difference in health care. We encourage you to congratulate Christensen and Christakis (through his book Connected) on Twitter.