Now Viewing: Health Data and IT

Big News in Big Data: NIH Launches Largest and Most Diverse Genetics Database Ever Created

Feb 26, 2014, 7:21 PM, Posted by Nancy Barrand

biobank

Eighteen years ago this month, Big Data had a cultural coming out party when IBM's Deep Blue defeated international chess champion Gary Kasparov in a game. Gary Kasparov was a chess genius. But Deep Blue could mine the records of 700,000 grandmaster chess games and evaluate 200 million positions per second. The famously nimble Kasparov ultimately could not match the brute computing force of Deep Blue. 

This week we mark another historic milestone in Big Data history. This time, there is more at stake than bragging rights from a chess competition. 

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Utility Data May Create Innovative Safety Net for Seniors

Jan 30, 2014, 4:30 PM, Posted by Pioneer Blog Team

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In the wake of Google’s acquisition of Nest, the much buzzed about maker of sensor driven thermostats, we’ve made our own investment in a Silicon Valley organization that seeks to make smart use of household utility data. The Palo Alto Medical Foundation Innovation Center is developing a home-based solution for proactively detecting changes in a senior’s social and physical health status. LinkAges Connect will use in-home data signals, such as utility use patterns, to monitor older adults’ health and support independent living at home.  Significant changes in use patterns will automatically trigger an alert to caregivers, thus providing a community safety net for seniors and peace of mind for their loved ones. As we look for sustainable solutions in elderly care, this nonintrusive home-based system could improve health outcomes for seniors by reducing accidents and hospitalizations.

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Persuading People to be Healthy: Thoughts from a Healthspottr Innovation Salon on Microtargeting

Jan 24, 2014, 8:00 AM, Posted by Lori Melichar

Lori A. Melichar Lori Melichar, director

If we're going to create a Culture of Health in this country, then we need to re-examine our influence strategies. In other words: We need to get better at delivering the exact right message or intervention that is most likely to get someone to take action that improves their health, their family or friends' health or the healthiness of their community. And that means we need to get better at microtargeting—applying the vast amounts of data available about people's habits and preferences to identify who is most persuadable.

I recently co-hosted an RWJF-funded Healthspottr Innovation Salon focused on the subject of microtargeting, where I met Ricky Gonzales of Enroll America and Erek Dyskant of BlueLabs, both of whom were on the Obama campaign's data analytics team. They talked about how they used microtargeting during the campaign and how those innovations may apply to health, something you can read more about in articles from The New York Times, Mother Jones, and the Wall Street Journal, among other sources. When I observed that several approaches they described might have applications for health and health care, Dyskant said, "Influencing people to make healthy decisions is much harder than getting someone to vote in a single election."

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Engaging Patients in Research

Dec 3, 2013, 8:00 AM, Posted by Paul Tarini

What happens when you engage patients in research? That’s a question RWJF is exploring with grants to Sage Bionetworks and PatientsLikeMe to build online, open-source platforms that give patients the opportunity to contribute to and collaborate on research.

Sage Bionetworks’ BRIDGE platform will allow patients to share and track their health data and collaborate on research into diseases and health problems that matter most to them. Three research projects will be piloted on BRIDGE in the coming year, focusing on diabetes, Fanconi anemia and sleeping disorders.

PatientsLikeMe’s Open Research Exchange (ORE) will give researchers and patients a space to work together to develop health outcome measures that better reflect outcomes that are meaningful to patients. After several months building the ORE, PatientsLikeMe is now in testing mode, putting the platform through its paces. But it’s not just an academic exercise. PatientsLikeMe has recruited four researchers to pilot the ORE. These researchers will be providing feedback on the site while working with patients in the PatientsLikeMe network to develop and test an initial set of health outcome measures.

Sage Bionetwork’s Stephen Friend discusses collaboration between patients and researchers

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Spurring Open Source Health Innovation

Nov 21, 2013, 3:00 PM, Posted by Lori Melichar

Lori A. Melichar Lori Melichar, director

I recently learned to Code… in a Day.

Why, you might ask, would a labor economist at a health foundation want to acquire programming skills that didn’t relate to statistical analysis? Well, for one thing, I was curious—I wanted to understand the magic that turns letters and numbers into apps with the power to make our lives easier, and our health better. And as a program officer tasked with funding transformative innovations, I wanted to gain perspective on the world of apps, mHealth and the culture of innovation associated with the Silicon Valley tech scene.

To be clear, here at Pioneer, we’re interested in innovations of all shapes in sizes—not just those that are technical in nature. We’ll take a low-tech approach that truly disrupts business-as-usual over a high-tech incremental improvement any day of the week. That said, considering the volume of proposals we receive that involve creating an app or online platform of some kind, it seemed like boosting my literacy in this area couldn’t hurt. (Though I’m fortunate to have colleagues like Steve Downs, the Foundation’s Chief Technology and Information Officer, to fill in gaps in my technical expertise.)

So I learned to code in a day, and I left the class with an app of my own creation. Even more valuable, I learned about developers’ habits and culture…“the developers’ code,” if you will.  And I saw a lot that I’d like to emulate.

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