As we set forth on the Health Data Exploration project, we're being guided by a wonderful set of advisors. Here's a quick video post from one of them, Larry Smarr, the director of Calit2. Larry's a pioneer who's exploring the frontiers of quantified self, as you can see from the extraordinary talk he gave at TEDMED earlier this year.
Jun 7, 2013, 3:29 PM, Posted by Paul Tarini
From: Paul Tarini
Date: June 7, 2013
Thomas, I agree with your description that Health Datapalooza is the place to be. For me, this year's conference was a great experience and offered a really rich environment for networking. At RWJF's booth and throughout the conference, I had conversation after conversation with a range of people who are interested in liberating data and using liberated data. I talked with researchers, entrepreneurs, health care providers, people from state and federal government, and representatives from large corporations. It was really quite impressive.
Jun 5, 2013, 4:01 PM, Posted by Brian C. Quinn
The big data hype cycle is playing out in predictable ways. Perhaps it’s inevitable that, after all the talk about how big data is going to save the world, we’re starting to see a similar rash of stories about how the promise of big data has been oversold. Microsoft Research’s Kate Crawford has been particularly outspoken as of late, with Quentin Hardy recounting her “six myths of big data” in The New York Times last weekend and Kate’s own Foreign Policy piece in May, which pointed out that big data put our privacy at risk, in addition to being susceptible to bias, misunderstanding, limitations and discriminatory outcomes.
I’m all for a little healthy skepticism. In fact, Pioneer seeks out those who are asking questions that others are not. But the potential of big data to take on some of health and health care’s most intractable problems is something we’re excited about here at RWJF. Too many Americans are unhealthy, our health care system isn’t working and I’m confident that effective analysis and use of big data has (at the very least a small) role to play in turning things around. I don’t want this backlash to stifle explorations into what that role could be.
Jun 4, 2013, 3:00 PM, Posted by Mike Painter
Earlier this year, Fast Company released its list of the 50 most innovative companies and named Nike No. 1. In that article, Nike CEO Mark Parker noted, “One of my fears is being this big, slow, constipated, bureaucratic company that's happy with its success…. Companies fall apart when their model is so successful that it stifles thinking that challenges it.” Kaiser Permanente did not make the Fast Company list—this year. But this nation-leading health care provider is working hard to ensure it’s not a big plugged-up company satisfied with its past success. KP works hard at innovating. KP's leaders and staff clearly do not take their past success and excellence for granted.
Jun 3, 2013, 8:00 AM, Posted by Beth Toner
From: Beth Toner
Date: June 3, 2013
So, I’m not the “rookie”—as you are, Christine—nor am I a seasoned veteran like Thomas and Paul. This is my second Health Datapalooza. Last year, I’d been at the Foundation not quite three months, and while I’m a health care provider, I can honestly say that I felt completely overwhelmed by how much I didn’t know about health data.
There’s still a lot about health data I don’t know, but I’ve been lucky enough to connect (both virtually and personally) with great colleagues and mentors who have given me a glimpse into how powerful data can be. For me, it all comes back to the patient: How can we harness data to change the way patients participate in care? How can we help patients harness their own data?