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PatientsLikeMe Project Pioneers Use of Outcomes Data That Are Meaningful To Patients

Feb 25, 2013, 12:33 PM, Posted by Pioneer Blog Team

Jamie Heywood Jamie Heywood
Paul Tarini Paul Tarini

RWJF has awarded PatientsLikeMe a $1.9 million grant to create the world’s first open-participation research platform to develop patient-centered health outcomes. The new platform will be linked with the PatientsLikeMe network to help researchers develop health outcome measures that better reflect patients’ experiences with a disease, and assess health and quality of life in ways that matter to patients.

Jamie Heywood, co-founder of PatientsLikeMe, and Paul Tarini, senior program officer of the Pioneer Team at RWJF, share their views on why creating an open-access platform to develop measures that matter to patients could advance meaningful treatments that improve health and advance research.

Why is this a pioneering project?  What makes it novel? 

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We Want to Know Your Thoughts About the TEDMED Great Challenges

Apr 10, 2012, 6:34 AM, Posted by Brian C. Quinn

Brian Quinn / RWJF Brian Quinn, RWJF assistant vice president

At the Robert Wood Johnson Foundation (RWJF), our mission is to improve the health and health care of all Americans. Good health and health care are fundamental measures of our success as a nation. That’s why we are pleased to support this year’s TEDMED conference (April 10-13), which brings together leaders from a wide array of medical and non-medical disciplines to explore the future of health and medicine.

In our 40 years, RWJF has learned several lessons that led us to support this year’s TEDMED conference. We’ve learned the importance of working with partners and building on the efforts of others; facilitating collaboration among unlikely allies; resisting the illusion of complete understanding; and being persistent.

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