How the Affordable Care Act Would Have Helped My Father
This is part of a series in which Robert Wood Johnson Foundation (RWJF) leaders, scholars, grantees and alumni offer perspectives on the U.S. Supreme Court rulings on the Affordable Care Act. Susan B. Hassmiller, PhD, RN, FAAN, is the Robert Wood Johnson Foundation Senior Adviser for Nursing and Director, Future of Nursing: Campaign for Action. This post also appears on Off the Charts, the blog of the American Journal of Nursing.
When I heard that the Supreme Court upheld the Affordable Care Act, I immediately thought of my father. He suffered mightily at the end of his life. Plagued with multiple chronic illnesses, he spent his last year in and out of hospitals. He received good hospital care, but his health deteriorated every time he left. He simply couldn’t keep track of a growing list of prescriptions, tests and doctor visits. My father accidentally skipped antibiotics, which led to infections, which landed him back in the hospital. He accidentally skipped blood tests, which landed him back in the hospital. It seemed that every time he came home, he’d land back in the hospital. I lived thousands of miles away and couldn’t be the advocate that he needed.
What he needed was transitional care – he needed a nurse to meet with him during a hospitalization to devise a plan for managing chronic illnesses and then follow him into his home setting. He needed a nurse to identify reasons for his instability, design a care plan that addressed them and coordinate various care providers and services. He needed a nurse to check up on him at home. Transitional care would have eased his suffering and enabled him to live better.
One of the best parts about the Affordable Care Act is that it will make transitional care possible for more patients. The transitional care program is one of many provisions in the law that will provide an unprecedented opportunity for nurses to take on greater roles as members of health care teams – they’ll be better able to provide preventive health care services, care coordination and chronic disease management to patients.
The Affordable Care Act came too late for my father, but I’m grateful that other patients and their families will be able to avoid the costly and heart wrenching cycle of repeat hospital visits and poor quality of life at the end of life. At least that is my hope.