Category Archives: Community Health Leaders

Jan 21 2015
Comments

Restoring Dignity to Those with Dementia

Judy Berry is the founder of Dementia Specialist Consulting and the Lakeview Ranch Model of Specialized Dementia Care in Darwin, Minn., and a 2010 recipient of the Robert Wood Johnson Foundation (RWJF) Community Health Leaders award.

Judy Berry
Aging in America

I live in rural Minnesota, and my passion is to make a significant contribution to improving dementia care in our society and to be an advocate for all seniors with dementia in their quest to maintain their basic human right to dignity, choice, and quality of life until their death.

My mother, Evelyn Holly, passed away 16 years ago. She spent the last seven years of her life being bounced from one nursing home or residential dementia facility to another, and in and out of hospital geri-psych units, all because of her so-called “challenging and aggressive behavior.” She spent the last year of her life strapped in a chair and drugged so she would be “compliant.” I imagine many of you have had similar experiences. Click on this link to view a video about my personal struggle with dementia care—a struggle that has fueled my passion to improve it.

After many years of heartache and frustration in my struggle to find appropriate care for my mother, and after being told repeatedly by others in the health care industry that the kind of dignified care that I visualized was impossible because it was too expensive, I discovered that I could not find any financial support for trying something different. I decided to use my own life savings to try to develop a model of specialized dementia care that would focus on the unmet emotional and spiritual needs of persons with dementia, many of whom are unable to communicate those needs, and to meet their physical needs as well.

Read more

Sep 18 2014
Comments

RWJF Scholars in the News: Antibiotic overuse, sexual assault nurse examiners, diaper banks, and more.

Around the country, print, broadcast and online media outlets are covering the groundbreaking work of Robert Wood Johnson Foundation (RWJF) leaders, scholars, fellows, alumni and grantees. Some recent examples:

RWJF Investigator Award in Health Policy Research recipient Anthony So, MD, MPA, co-authors a piece in the News & Observer (Raleigh, North Carolina) about the need to reduce the overuse of antibiotics, in both humans and animals. Overuse accelerates the development of antibiotic-resistant bacteria. The Centers for Disease Control and Prevention estimates that half of human antibiotic use and much animal antibiotic use is unnecessary, the article says. So calls for public policies that create incentives for farmers to decrease use of antibiotics and that limit antibiotic use in animals to disease treatment, rather than growth-promotion or as a substitute for hygiene and infection-control.

In Chicago, most children with asthma or food allergies do not have a health management form on file at school, leaving their schools without information they might need in emergencies, according to a study by RWJF Physician Faculty Scholars alumna Ruchi Gupta, MD, MPH that was covered by Reuters Health. Researchers analyzed 2012-13 school year data on more than 400,000 Chicago schoolchildren, including 18,287 with asthma and 4,250 with a food allergy. Only a quarter of the asthmatic students and half of those with a food allergy had a health management plan on file. The study was also covered by The Chicago Tribune, Fox News, The Baltimore Sun, and Red Orbit, among other outlets.

RWJF Nurse Faculty Scholars alumna Angela Frederick Amar, PhD, RN, FAAN, publishes an op-ed on Talking Points Memo about the report from the White House Task Force to Protect Students from Sexual Assault, Not Alone. Amar notes that effective response to campus sexual assault should include medical care for survivors, and that Sexual Assault Nurse Examiners (SANEs) are trained to tend to the medical and emotional needs of survivors and collect forensic evidence. In other institutions with high rates of sexual violence, such as the military, SANEs are considered an essential part of treatment for victims of sexual violence, Amar writes.

Read more

Jun 19 2014
Comments

RWJF Scholars in the News: Debt and health, tax exemption controversy, peer influence on adolescent smokers, and more

Around the country, print, broadcast, and online media outlets are covering the groundbreaking work of Robert Wood Johnson Foundation (RWJF) leaders, scholars, fellows, alumni, and grantees. Some recent examples:

In the context of the Obama administration’s efforts to ease student loan debt, TIME reports on a study by RWJF Health & Society Scholars program alumna Elizabeth Sweet, PhD, that explores the toll debt takes on the borrower’s physical health. Past studies have focused on mental health issues, TIME writes, but Sweet’s research links debt not just to mental health, but also to high blood pressure and general health problems. Sweet says the problem has long-term implications. “These health issues are a warning for more health problems down the road,” she says, “so we have to think about this as a long-term phenomenon.” Forbes also highlights her research.

A Medscape story about a study that shows a direct correlation between vaccinating health care personnel against influenza and reducing cases of flu in the community quotes Mary Lou Manning, PhD, RN, CPNP, an RWJF Executive Nurse Fellows alumna. “We now actually have evidence indicating that higher health care worker vaccination rates in hospitals are having a community effect; they’re actually resulting in lower rates of influenza in the community. That’s remarkably exciting,” says Manning, who is president-elect of the Association for Professionals in Infection Control and Epidemiology. The article is available here (free login required).

Modern Healthcare reports on federal efforts to address concerns about tax exemption for certain nonprofit hospitals, citing research by Gary Young, JD, PhD, recipient of an RWJF Investigator Award in Health Policy Research. In order to obtain tax-exempt status, the Affordable Care Act requires nonprofit hospitals to track and report the charity care and community benefits they provide. Young found wide variation in the contributions of nonprofit hospitals. “The current standards and approach to tax exemption for hospitals is raising concerns about a lack of accountability for hospitals,” he says, and creating problems because “hospitals don’t really know what’s expected of them.” The Internal Revenue Service has proposed a rule to address the issue. (Free registration is required to view the article.)

Read more

Jun 5 2014
Comments

RWJF Scholars in the News: Diversity in the nursing workforce, barriers to breast-feeding, child maltreatment, and more.

Around the country, print, broadcast, and online media outlets are covering the groundbreaking work of Robert Wood Johnson Foundation (RWJF) leaders, scholars, fellows, alumni, and grantees. Some recent examples:

HealthLeaders Media features New Careers in Nursing (NCIN), a joint initiative of RWJF and the American Association of Colleges of Nursing (AACN) that is increasing diversity in the nursing workforce. “The reason [increasing diversity] is important, of course, is because the population of nursing does not really reflect the population at large,” Polly Bednash, PhD, RN, FAAN, says in the story. “We are now working very aggressively to have the number of people entering the profession look more like the population of the United States.” Bednash is NCIN program director and AACN’s CEO.

In an opinion piece for the Philadelphia Inquirer, Jooyoung Lee, PhD, writes that, in the aftermath of mass shootings, the media and public often focus chiefly on the shooters and forget about the families of those slain. “Instead of fixating on the shooter, or retreating into our own lives, let’s remember and honor those who are left behind. Their lives are often difficult and grinding; their grief is immeasurable. Healing from murder is rarely—if ever—a quick or complete process,” writes Lee, an RWJF Health & Society Scholars program alumnus. Read more about Lee’s work.

Living in neighborhoods with high rates of violence can affect students’ academic performance, according to a study from RWJF Health & Society Scholars program alumnus from Patrick Sharkey, PhD. The Washington Post reports that the study found that neighborhood violence that occurred within seven days of a test appeared to reduce Black children’s performance on language arts assessments. “When violence is in the air, when the threat of violence is in the air, then it becomes something that spills over to affect not just people who are involved, but everyone who lives in the community,” Sharkey says.

Read more

May 29 2014
Comments

RWJF Scholars in the News: Scandals and reforms at the VA, excluding the elderly from medical studies, and more.

Around the country, print, broadcast, and online media outlets are covering the groundbreaking work of Robert Wood Johnson Foundation (RWJF) leaders, scholars, fellows, alumni, and grantees. Some recent examples:

In a Washington Post opinion piece, RWJF Scholars in Health Policy Research alumnus Colin Moore, PhD, writes that the budding scandal over patient waiting times at regional Department of Veterans’ Affairs medical centers (VA) could lead to positive reforms, if past troubles at the VA are any guide. “Throughout its history, the VA’s very public failures have shaped its development as profoundly as its successes,” Moore writes. For example, previous failures led to the adoption of the 1996 Veterans’ Health Care Eligibility Reform Act, which transformed the VA by opening more outpatient clinics and embracing new ways to track and measure health care outcomes. The recent scandal involving falsified reporting on patient waiting times could lead to another cycle of much-needed improvements, Moore writes.

“Doctors are often in the dark” when prescribing medications or procedures to older patients, because the elderly are routinely excluded from medical research, Donna Zulman, MD, MS, co-writes in an opinion piece for the New York Times. Studies have shown that 40 percent of medical research excluded individuals over the age of 65. “Clinicians consequently have to extrapolate findings about diseases as diverse as cancer, heart attacks, and mental illness from studies of younger and often healthier people, potentially putting their older patients at risk.” Older patients should be included in medical studies because age can affect the way a person’s body processes medication and other treatments, according to Zulman, an RWJF Clinical Scholars alumna.

Read more

Feb 11 2014
Comments

Taking a Hint from Home Hospice Care to Help Those Who Die in Hospitals

Adopting best practices from home-based hospice care in the inpatient environment can reduce suffering at the end of life, according to a study published in the Journal of General Internal Medicine.  Researchers at the Birmingham Veterans Affairs Medical Center and the University of Alabama at Birmingham said the study is the first to show that palliative care techniques usually used in home settings can have an impact on those who die in hospitals.

The Best Practices for End-of-Life Care for Our Nation’s Veterans (BEACON) trial was conducted at six Veterans Affairs Medical Centers from 2005 to 2011 and involved training more than 1,620 staff members in aspects of care for more than 6,000 dying patients. Although focused on veterans, the study can have a wider impact, researchers said, because most Americans will die in the inpatient setting of a hospital or nursing home.

“We only die once, and therefore there is only one opportunity to provide excellent care to a patient in the last days of life,” wrote lead author F. Amos Bailey, MD, director of the Safe Harbor Palliative Care Program at the Birmingham Veterans Affairs Medical Center, professor in the Division of Gerontology, Geriatrics and Palliative Care at the University of Alabama at Birmingham School of Medicine, and a 2000 Robert Wood Johnson Foundation Community Health Leader. “The keys to excellent end-of-life care are recognizing the imminently dying patient, communicating the prognosis, identifying goals of care, and anticipating and palliating symptoms. Since it is not possible to predict with certainty which symptoms will arise, it is prudent to have a flexible plan ready.”

Read more

Oct 31 2013
Comments

Human Capital News Roundup: The cost of disposable diapers, toxins in fish, fast food calories, and more.

Around the country, print, broadcast, and online media outlets are covering the groundbreaking work of Robert Wood Johnson Foundation (RWJF) leaders, scholars, fellows, alumni, and grantees. Some recent examples:

WNYC in New York City broadcast an interview with RWJF Community Health Leader Joanne Goldblum about families reusing disposable diapers due to economic hardship. Goldblum, who is founder and executive director of the National Diaper Bank Network, conducted a study that shows how the practice leads to a range of problems for families living in poverty.

When it comes to digital health and new ways to deliver care, the focus should be on the consumer and improving outcomes, not on the technology, according to experts at a recent Connected Health Symposium in Boston, Massachusetts. Mobile Health News reports that Propeller Health (formerly Asthmapolis) CEO David Van Sickle, PhD, MA, an RWJF Health & Society Scholars alumnus, pressed for greater emphasis on outcomes.  Read more about Van Sickle’s work here and here.

An American Thoracic Society panel of experts, including RWJF Interdisciplinary Nursing Quality Research Initiative (INQRI) grantee Richard Mularski, MD, is calling for better care for those who suffer severe shortness of breath due to advanced lung and heart disease. The Annals of the American Thoracic Society reports that the panel recommends patients and providers develop individualized actions plans to keep episodes from becoming emergencies, Medical Xpress reports.

Read more

Oct 16 2013
Comments

Illinois Governor Declares “Carmen Velásquez Day”

For nearly 25 years, Robert Wood Johnson Foundation Community Health Leader Carmen Velásquez, MA, has helped members of Chicago’s immigrant community access the health care they need. She founded the Alivio Medical Center in 1988, which has now grown to six locations that serve 25,000 patients annually. Two more clinics are slated to open later this year.

In recognition of her work, Illinois Governor Pat Quinn proclaimed October 2, 2013 “Carmen Velásquez Day.” At an event celebrating Latino Heritage Month at the National Museum of Mexican Art in Chicago, Quinn called Velásquez “a true pioneer in public health policy and health care affordability.”

“As the immigrant population in the Pilsen neighborhood grew in the 1980s, Carmen Velásquez was among the first to see the crying need for a health clinic, so she went out and built Alivio Medical Center,” he said. “Hundreds of thousands of Illinoisans are alive today thanks to her, proving that one person truly can make a difference.”

Read more about Velásquez’ work.
Read a news release about “Carmen Velásquez Day.”

Sep 25 2013
Comments

Pennsylvania Adopts Law Supporting Insurance-Less Health Care Offices

Zane Gates, MD, is a Robert Wood Johnson Foundation (RWJF) Community Health Leader and medical director of Altoona Regional Partnering for Health Services in Altoona, Pennsylvania. Gates and Patrick Reilly, president of Impact Health Solutions, founded the Empower3 Center for Health program, which is the model for a new health care law in Pennsylvania.

file

The Commonwealth of Pennsylvania has recently adopted a law to fund community-based clinics that can demonstrate real impact to the community with regard to increased access, reduced costs, lower emergency room (ER) visits, and improved behavioral health outcomes for the low-income working uninsured.  It is modeled on community-based clinics featuring a unique structure that I created along with Patrick Reilly, an insurance consultant from western New York:— Empower3 Center for Health program.

The model we created features an “insurance-less” office concept that allows patients to come in as frequently as needed without worrying about being billed or having any balances to pay. The program has no co-pays, deductibles or balance billing when the patients use the participating community hospital that partners with the program.  Since there is no billing at the point of service, there is more face time with the medical professionals to spend creating a true relationship that focuses on care and provides dignity to the patients seeking quality medical care. The office is open five days a week to provide access to patients as needed. 

Read more

Aug 22 2013
Comments

Human Capital News Roundup: Lead exposure and behavior problems, debt's impact on health, health exchange 'navigators,' and more.

Around the country, print, broadcast, and online media outlets are covering the groundbreaking work of Robert Wood Johnson Foundation (RWJF) leaders, scholars, fellows, alumni, and grantees. Some recent examples:

More Americans are dying from obesity than previously thought, according to a new study by Ryan Masters, PhD, an alumnus of the RWJF Health & Society Scholars program. In recent decades, 18 percent of deaths of Americans ages 40 to 85 can be attributed to obesity, NBC News, USA Today, and the Los Angeles Times report, which is much higher than the often cited 5-percent toll.

Pennsylvania Governor Tom Corbett last week signed a new health care law based on a plan designed by RWJF Community Health Leader Zane Gates, MD, the Philadelphia Inquirer reports. The measure will provide $4 million to community health centers in rural and underserved areas.

Children exposed to lead are nearly three times more likely to be suspended from school by the 4th grade than their non-exposed peers, according to a study co-authored by Health & Society Scholars alumna Sheryl Magzamen, PhD, MPH. “We knew that lead exposure decreases children's abilities to control their attention and behavior, but we were still surprised that exposed children were so much more likely to be suspended,” she told Science World Report.

WHYY (Philadelphia) spoke to RWJF Executive Nurse Fellows alumna Cheri Lee Rinehart, BSN, RN, about grants to train "navigators" to assist people as they purchase insurance through health exchanges. Rinehart is president of the Pennsylvania Association of Community Health Centers, one of five groups in the state that are receiving the federal funds.

Read more