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From Trauma to TED: Boston Marathon Survivor Adrianne Haslet-Davis on Recovery, Care, and Collaboration

Apr 21, 2014, 12:30 AM, Posted by Shaheen Mamawala

Adrianne Haslet-Davis Adrianne Haslet-Davis (photo by James Duncan Davidson)

Last month, I attended my first TED conference in Vancouver, Canada. Though inspiring, it was also overwhelming—in a sea of over 1200 guests, it can often be challenging to make meaningful personal connections. However, when I saw Adrianne Haslet-Davis step onto the stage and dance a beautiful rumba while wearing her prosthetic leg, I knew she was someone I wanted to meet.

While Adrianne and I had just a quick exchange of hellos in person at TED, I was further inspired by the message she wrote when she stopped by our RWJF Culture of Health Café. There she offered her own vision of a Culture of Health, framed within her personal experiences as a victim of the 2013 Boston Marathon bombing. Adrianne graciously offered to expand on her personal Culture of Health vision in a brief interview with me.

Shaheen: You recently returned from TED2014 in Vancouver, where you gave a powerful dance performance. Tell us about that experience.

Adrianne: It was no question at all where I wanted to dance [publicly] again for the first time.  It was important for me to do it at TED because I so strongly believe in TED’s message of getting people to think outside the box about issues that maybe we don’t know we’re interested in. I think it’s really eye-opening in that way.

I went into the project with Hugh Herr, director of the Biomechatronics Group at the MIT Media Lab, who came to me and said “Adrianne, I think we can make this [performance] happen but I’m not going to guarantee it. Are you in?” I said yes because it really helped me have a goal.

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Reflections on TED2014: Ideas Worth Spreading … FASTER!

Apr 18, 2014, 2:11 PM, Posted by Lori Melichar

Pattie Maes, MIT Media Laboratory, speaking at TED2014 Pattie Maes, MIT Media Laboratory, speaking at TED2014

When people find out I work for the Robert Wood Johnson Foundation, they often want to tell me their idea for solving the problems that keep Americans from being as healthy as they can be. It's one of the pleasures of my job. Some of these ideas are indeed pioneering,  with the potential for breakthrough change.  All of them are helpful in shaping my vision of a path to achieving a Culture of Health.

I heard a lot of ideas last month while representing RWJF at TED2014. If you aren’t familiar, TED is an organization dedicated to spreading ideas through inspiring talks and conversations. Their annual conference is a great place to meet leaders from a variety of disciplines, from science and technology to business and the arts, and it was a privilege to attend.

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The Doctor Will Share With You Now

Apr 17, 2014, 4:43 PM, Posted by Risa Lavizzo-Mourey

Elaine Benes Seinfeld Screen Grab for Risa OpenNotes LinkedIn blog post

What does an episode of the Seinfeld show have in common with an RWJF national initiative?

In the first case, Seinfeld character Elaine Benes gets to see the notes written about her by her doctor. In the second, OpenNotes promotes exactly the same thing—patient access to the visit notes written by their doctors.

In Elaine’s case, that access was accidental. She took a quick look at her chart, only to see herself described as “difficult.” And merriment ensued.

Under the OpenNotes initiative, which started in 2010, Elaine would have been able to check out her doctor visit notes via a web-based portal. She wouldn’t have needed to sneak a peek. It’s unlikely she would have been described as “difficult.”

Numerous studies show that patients do want to see their records, and the evidence suggests that when they do, it leads to better health.

In a new post on the professional social networking site LinkedIn, RWJF President and CEO Risa Lavizzo-Mourey, MD, MBA, notes that the concept is catching on, and OpenNotes is leading the charge. “OpenNotes will lead not only to a more efficient health care system,” she writes, “but better health for all of us.”

Read Lavizzo-Mourey’s LinkedIn post

Understanding The Value In Medicare's Physician Payment Data Dump

Apr 14, 2014, 9:24 AM, Posted by Susan Dentzer

New Jersey Patient Care

A 35-year battle is over and the taxpayers have won: We have the right to know how much physicians receive in Medicare dollars in exchange for providing our care. But now that the Centers for Medicare and Medicare government has released data on $77 billion in Medicare Part B payments to providers during 2012, what do we really know—or have—that we didn’t have previously? Information alone isn’t knowledge or, for that matter, insight.

For consumers, the slew of raw data ultimately may be useful if it can be packaged into applications that help them compare the way physicians practice—as the Office of the National Coordinator for Health Information Technology now proposes in a newly announced challenge. Private payers, such as insurers, may also find the Medicare data useful, as they can the information to better understand the practice patterns of providers they include in their networks.

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We Do Better When We Do for Others

Apr 14, 2014, 3:15 AM, Posted by Jody L. Struve

Jody’s son mashing it up at MakerFaire NYC Jody’s son mashing it up at MakerFaire NYC

This morning, I figured out how to save the planet. That’s the power of Twitter, friends. (Or that’s the power of Twitter when you’re bleary-eyed at 5:10 a.m., and meant to hit the Weather app to find out if your kids’ school might close, but instead you see a tweet that the United Nations has concluded global warming is indeed our fault, next to a tweet about food trucks, next to one about ...)

Twitter allows you to take in lots of disparate information at odd hours, and that can result in ... odd ideas.

In a flash, I saw an opportunity to solve two problems with one solution—a mash-up, if you will. By 5:15 a.m., still half asleep, looking at my smartphone, it became clear to me that the way to save the planet was to create “energy parks” that generate power through peoples’ physical activity, addressing obesity and climate change in one fell swoop.

Stay with me here.

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"It's Good to Know the Red Cross is There"

Apr 11, 2014, 5:06 PM, Posted by Jeff Meade

Northern New Jersey American Red Cross volunteers Hart Coven and Bob Hassmiller Northern New Jersey American Red Cross volunteers Hart Coven and Bob Hassmiller (photo by Jeff Meade)

The emergency response vehicle (ERV) fielded by the American Red Cross of Northern New Jersey is all gleaming white with shining chrome, flashing lights, diesel engine chugging away, the distinctive Red Cross logo emblazoned on its sides, larger than life.

The truck itself is about the size of a small delivery van, but even with a pair of comfortable padded seats, the inside looks roomy. But don't be fooled. Each of the red plastic insulated crates stacked like Lego bricks up toward the front of the truck can contain 50 hot meals. That’s a lot of mac and cheese. Up to 350 meals in all on a really busy night. There's enough coffee and juice to revive and hydrate exhausted firefighters for hours. Volunteers can give out a good many compact little "comfort kits," containing toiletries and other day-to-day necessities.

And of course, there are blankets—the big, warm white ones, also bearing the Red Cross symbol. The kind you see on local TV news, draped around the shoulders of folks driven from their  apartment complex by an overnight multi-alarm blaze.

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Why Empathy is Essential to a Culture of Health

Apr 11, 2014, 11:34 AM, Posted by Tara Oakman

Peace activist Zak Ebrahim speaks at TED 2014

Everyone knows it is hard to get 2-year-olds to do anything on a schedule. They want to do everything their way, on their own time. As you can imagine, trying to get my twins out the door each morning—let alone take a bath or eat a meal, can be quite a challenge. After trying a number of different parenting methods, I have discovered that the one way I can usually motivate them is to talk about feelings, and get them to recognize how their actions affect their sibling. Just yesterday, the only way I could get my son out of the bath was by telling him that his sister was sad and lonely waiting for him. And then, and only then, did he move.

Building empathy has been a critical strategy in my household of late—not only because it helps motivate them, but also because it is an important part of their social development. Lately I have been thinking about empathy on a larger scale, beyond my household, and how critical it is to building a Culture of Health.

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Five Simple Things to Do Today to be Prepared for an Emergency

Apr 7, 2014, 9:00 AM, Posted by Sean D. Andersen

new jersey red cross fire photo

What if your doorbell rings tonight, and a policeman tells you your neighbor’s home is on fire and you and your family must get out of the house immediately?

What if a family member starts choking at the dinner table?

What if a tornado warning is issued at this very moment?

Although scary to imagine, all of the above are realistic scenarios families face here in New Jersey, and throughout the United States. Would you know what to do? Are you prepared?

Disasters can strike quickly and often without warning. Being prepared and knowing what to do in an emergency can make all the difference—it can even save lives.

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Making a Collective Impact in the Lives of Young Men of Color

Apr 2, 2014, 9:15 AM, Posted by Maisha Simmons

Hispanic, Iraqi and African American male students

On a bone-chilling cold day in Chicago last fall, I went on a site visit for a pending grantee. The grantee's office was warm and cozy, tucked away in a neighborhood with a bustling corridor of small businesses that sold a variety of ethnic foods and baked goods. The office walls told the stories of the neighborhood through brightly colored murals depicting loving families and happy children, on a backdrop of a beautiful Chicago landscape.

During this site visit I met a young man named Jose who captivated the room with his story. Jose loved art, even though his school had no art program. Art was the one way that he could express his love, fear, joy and pain. The art poured out of him—on his notebooks and books, and eventually on the walls and fences of his community. Luckily, a relative recognized Jose’s talent and found a community art program where he could learn his craft and express himself on canvases and murals instead of on buildings and public property.

A few months later, Jose was called into his principal’s office and threatened with suspension. Teachers and staff suspected that Jose was to blame for recent vandalism on school property. Shocked and nervous, Jose tried to explain that his art program had given him an outlet and that he no longer drew on desks or walls. But he had no proof and was suspended.

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County Health Rankings: Five Key Elements of The Picture of Health

Mar 28, 2014, 10:16 AM, Posted by Susan Dentzer

Behind the County Health Rankings: What makes a county healthy or unhealthy?
Skip Rope

Paint a portrait of a healthy county, and you’d show the features that contribute to good health: high incomes and levels of education; access to health care; plentiful healthy food, and ample places to exercise.   

Paint a portrait of an unhealthy county, and the palette becomes darker: higher rates of joblessness; more children in poverty; high rates of smoking, obesity and physical inactivity; and more people living in sub-par housing that they may struggle to afford. 

Those, in fact, are the real portraits emerging from the 2014 County Health Rankings, newly released by the Robert Wood Johnson Foundation and the University of Wisconsin Population Health Institute.

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