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Health Records

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Building Big Data, One Swab at a Time

March 14, 2013 | Pioneering Ideas Blog Post

PBS NewsHour recently featured Pioneer grantee Kaiser biobank. In her blog post, Nancy Barrand shares how Pioneer first became involved with Kaiser's biobank.

Systematic Update of Computerized Physician Order Entry Order Sets to Improve Quality of Care

March 1, 2013 | Journal Article

Physician order sets require rigorous review and maintenance to ensure quality of care and safety.

The Kaiser Permanente Research Program on #11;Genes, Environment and Health

January 30, 2013 | Grantee

Building a unique databank that will enable groundbreaking studies of genetic, environmental, and social determinants of common disease.

A Health Care Identifier for Each Patient

October 29, 2012 | Program Result Report

Researchers at Western Health Information Network demonstrated the technical feasibility of using a voluntary universal health care identifier card to link each person with their health record.

OpenNotes: A "New Medicine" with Clear Benefits

October 1, 2012 | Video

OpenNotes, a year-long study set out to answer a simple, but revolutionary, question: What happens when we give patients access to the notes their doctors write about them? The answer: Patients become more active partners in their own care.

Information Gap

March 1, 2009 | Journal Article

Personal health records (PHRs), centralized places for people to electronically store and organize their health information, can benefit both patients and doctors. This qualitative study of health insurers' PHRs for enrollees reveals potential benefits and challenges.

North Carolina Creates Links Among Health Data, Markets Findings

May 1, 1999 | Program Result Report

From 1992 to 1997, North Carolina sought to develop a proactive, cooperative health information system to enhance the state's capacity to meet its health care policy needs.

Highlights of the Final Omnibus HIPAA Rule

January 30, 2013 | Issue Brief

This brief details changes to the federal rule implementing modifications to the Health Insurance Portability and Accountability Act (HIPAA).

Mining a Treasure Trove of Essential Information about People’s Health

November 27, 2012 | Story

Some of the richest information about people’s health lies in their attention to the details of their own lives.

Project HealthDesign: Rethinking the Power and Potential of Personal Health Records

October 1, 2010 | Program Result Report

Project HealthDesign addresses the challenge of giving people the information tools they need in personal health records to help manage their health conditions.

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