OpenNotes

Enabling patients to see their doctors' visit notes is a simple idea that has the potential to transform the way patients engage with their health care. OpenNotes helps us move toward an era when patients have the information they need to become true partners in discussions and decisions about their care.

Supported by RWJF, researchers undertook a year-long trial of OpenNotes in which 105 doctors shared their notes with more than 19,000 patients in Boston, rural Pennsylvania, and Seattle. They found that when patients have access to their doctors’ notes, they feel more in control of their health care, better understand their medical issues, and report they are more likely to take their medications as prescribed. Virtually all participants supported the idea of seeing their medical notes, and no doctors elected to stop sharing visit notes with their patients once the study ended.

With this evidence in hand, OpenNotes is working to make sharing visit notes with patients a routine part of care. Both Beth Israel Deaconess Medical Center and Geisinger Health System have expanded OpenNotes, with more doctors and other clinicians sharing notes with patients. Milwaukee’s Columbia St. Mary’s health system and The Department of Veterans Affairs have adopted OpenNotes. Expansion plans are under way at other health systems across the country.

Contact

Beth Israel Deaconess Medical Center

Boston, MA

Tom Delbanco, MD
Project Director

Janice D. Walker, RN, MBA
Project Director

 

Patients Support, Use, and Benefit from Open Visit Notes

A “New Medicine” With Clear Benefits

OpenNotes set out to answer a simple, but revolutionary, question: What happens when we give patients access to the notes their doctors write about them? The answer: Patients become more active partners in their health care.

Health Care Leaders Speak Out

Hear health care leaders talk about OpenNotes and how it has transformed patient care at their facilities.

This study will be looked back upon as a watershed moment in the growth of participatory med - @Forbes

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99

Percentage of @myopennotes patients who want access to doctor notes to continue past study

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Zero

Number of doctors who stopped sharing visit notes with patients when @myopennotes pilot ended

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Evidence that OpenNotes Works

OpenNotes was tested in three health centers around the country: Beth Israel Deaconess Medical Center, a teaching hospital in Boston; Geisinger Health System, a rural set of clinics in Danville, Pa.; and Harborview Medical Center, a safety net hospital in Seattle.

After 12 months of note-sharing, doctors and patients reported on their experiences. Having easy access to their doctors’ notes helped patients feel more in control of their care. Patients also reported a better understanding of their medical issues, improved recall of their care plan, and being more likely to take their medications as prescribed.

Doctors who participated in the study reported that most of their fears about sharing their notes with patients—greater demands on their workload and confusing or worrying patients—did not materialize. Many reported that note-sharing strengthened their relationships with patients by enhancing trust and transparency, improving communication, and increasing shared decision-making.

Read the Annals of Internal Medicine study, accompanied by a patient editorial, as well as commentary from a doctor working in the Department of Veterans Affairs.

News and published research from OpenNotes

Let’s Show Patients Their Mental Health Records

Let’s Show Patients Their Mental Health Records

In this JAMA Opinion piece, principle investigators from the OpenNotes project and a psychiatrist from Beth Israel Deaconess Medical Center in Boston describe how open access to medical notes can reduce stigma and help patients struggling with mental health issues.

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The Road Toward Fully Transparent Medical Records

The Road Toward Fully Transparent Medical Records

In this New England Journal of Medicine commentary, OpenNotes investigators share how a project that initially included just over 100 doctors and 20,000 patients is anticipated to become the new “standard of care’’.

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The Essence of Morning

The Essence of Morning

This article relays the experience of Leonor Fernandez, MD, with OpenNotes. Through the story of his patient Diana, among others, Fernandez reflects on the complexity of the patient-provider relationship and the ways in which sharing patient notes provides both opportunities and challenges.

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Evaluating the Impact of Patients' Online Access to Doctors' Visit Notes

Evaluating the Impact of Patients' Online Access to Doctors' Visit Notes

In this study, the authors conducted a one-year, multi-site trial of patient-accessible online office visit notes system OpenNotes, and found that many primary care physicians were willing to participate.

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Inviting Patients to Read Their Doctors' Notes

Inviting Patients to Read Their Doctors' Notes

In a study in the Annals of Internal Medicine, primary care physicians and their patients in nine practices and three states were invited to participate in an OpenNotes demonstration project and be surveyed about potential benefits and risks of open visit notes. Participating primary care physicians and their patients thought open notes were a good idea and would improve patient satisfaction.

 

 

 

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OpenNotes: Doctors and Patients Signing on

OpenNotes: Doctors and Patients Signing on

This article in the Annals of Internal Medicine, published July 20, 2010, reports on conversations the authors conducted with doctors and patients about anticipated risks and benefits of open medical record access before they experienced OpenNotes. Benefits anticipated by patients and doctors included better communication with one another, improved recall of the patient visit, and increased ability to build a personal care network with family and friends.

 

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News on OpenNotes

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OpenNotes on Pioneering Ideas Blog

REad what People are saying about Opennotes...

…In Milwaukee Journal Sentinel: “Patients get access to doctors' notes online in Milwaukee-area first”.

...At Fast Company's Co.Exist: "You Can Now Find Out What Your Doctor Is Writing Down In That File"

...In HealthLeaders Media: "Opening Up to Patients"

... In AHRQ’s Health Care Innovations Exchange: "Online Patient Access to Visit Notes Generates Positive Early Reviews From Patients and Primary Care Physicians"

...In The New York Times Well blog: "Letting Patients Read the Doctor’s Notes"

...In The Wall Street Journal: "Access to Doctors' Notes Aids Patients' Treatment"

...On Forbes.com: "Historic Day in Opening Doctor's Notes"

...In The Atlantic: "Would You Want to See Everything Your Doctor Writes About You?"

...On CNN's The Chart blog: "Study: Doctors should share notes with you"

...In Reuters: "Patients like reading their doctors' notes: study"